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Subject Topic: Newly Diagnaosed, would love opinions Post ReplyPost New Topic
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logancaud
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Posted: 10 November 2009 at 8:52pm | IP Logged Quote logancaud

Hello all. My 5 year old kindergartener was just diagnosed with ADHD a couple of months ago. I have held out on medication until now, but time is up, his teacher is severely recommending it. He is learning well in school, but he just cant concentrate or sit still. He fidgits constantly and gets super embarrased about it when he realizes that everyone is staring at him. He is anti social in the sense that he will not participate in class or even talk to the teacher without whispering. He has a super hard time making friends due to his backward nature. When the doctor diagnosed him, she told me to give her a call if I decide to try him on meds and she will call him in some. I know that there are so many different kinds out there and so many not so fun side effects, so I am just wondering if there is any one drug that you all would recommend that seems to work better than others? This is just his regular pediatrician treating him, so I'm pretty confident that she would be open to any suggestions on medication that I give her, if it is acceptable to give at his age.
Thank you all so much. I am really enjoying reading through the posts and discovering that I am not alone in this. We have dealt with this for years without any treatment. A different pediatrician tried to tell me he was ADHD at 3 years old and i just wouldnt hear it, my goodness, he was a toddler. So basically, I have been ignoring his behavior and pretending that he is normal until now. I always told myself that I would dig deeper into this if and when it affects school, and we are at that point now....any advise would be so appreciated!!

Edited by logancaud on 10 November 2009 at 8:53pm


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BETHANN
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Posted: 11 November 2009 at 5:50am | IP Logged Quote BETHANN

I wish I had started my son on meds in kindergarten. I waited until 1st grade, but then everything came crashing down. He too was on target with learning, but it was what he couldn't control, his adhd.

No of here can recommend any one drug. We can tell you our experiences but they will be different. Every person's body is different. What works for one may not work for another, or maybe with a different dose.

My son couldn't handle adderall xr (time released) it made him aggitated and he would get in the kids faces - the teachers had never seen that before! This med leaves the body completely once worn off.

Concerta works best for him, but he takes a higher dose than others. This wears off and leaves the body completely. We also have him on a med that helps relax him and control impulsiveness. It is called guanfacine.

He also tried strattera, this helps those who aren't really hyper just more inattentive, but it builds up in the blood over time, never leaves the body unless you stop taking it. BUT it has side effects that did not like my son. It depressed him and he wanted to kill himself at age 8. We stopped this med.

All have side effects, like trouble eating - loss of appetite, trouble sleeping, etc. BUT for us, my son adjusted to it and the postives ALWAYS out weighed the negative. We dealt with him being skinny and still eating and staying up late. We gave him lots of calories that after a while, his body adjusted and he started gaining weight. Now he looks normal.

He also uses a psychopharmacologist for prescribing these meds. Our ped. referred us. He told us this was not his specialty and wanted our son seeing a specialist in the field.

I hope this is of some help - but you will have to try the meds and try different dosages before you know where you are at.

I wish you well and praise you for starting in kindergarten, i still suffer guilt for what my son went though and sufferred due to it my fear and ignorance and waiting.   He was diagnosed just shy of his 5th bday and started meds just shy of his 7th bday. A lot happened in those two years that could have been prevented with the help of meds.



Edited by BETHANN on 11 November 2009 at 11:17am
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Logan'sMom
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Posted: 11 November 2009 at 11:12am | IP Logged Quote Logan'sMom

Bethann is right.  The meds act VERY differently with each individual child so it's hard to say what works best...I know that the docs tend to prescribe Adderall to the younger kids because the label is for younger kids than some of the other drugs.  I think it may be 4.

My son was 3 when he started meds so they started him on Adderall.  It had an immediate positive effect on his hyperactivity and impulsiveness but made him angry and aggitated.  We ended up switching to the Ritalin family and he does much better with that.  His doc said that she has better luck generally with the side effects of Ritalin vs Adderall-but that's just in general. He's also on guanfacine (generic Tenex) to help couteract the annoying side effects of the Ritalin and it works very well for him.

Good luck on the medication journey!  It can be frustrating and tiring but if you keep fighting to get it right it will all come together and you'll be soooooooo happy you did it! Keep us posted!



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logancaud
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Posted: 11 November 2009 at 5:52pm | IP Logged Quote logancaud

He was just prescribed Focalin XR. I am new to all of this, so I just have to trust the doctor and take what she gives him. One concern I have is that it says its not be given to kids under 6 and my son is 5, turning 6 at the beginning of April. She said its ok, but worry wart me, seems to think its not! I'm just scared. She said to start him in the morning, but he will be at school and I wont be there to see his reaction on his first dose (all day kindergarden), that worries me too. What if he doesnt handle it well, what if it makes him feel funny and mommy isnt there? Should I wait until Saturday morning so that I can be with him his first dose? Ugh! This is so hard!!

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BETHANN
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Posted: 12 November 2009 at 2:54am | IP Logged Quote BETHANN

Great question and again, this is a personal decision.

My personal opinion is I would start it Saturday then you can observe how he is handling it and feeling. I wouldn't like it if he went to school and had a reaction. I would want it in the privacy of my own home.

This way between both Sat and Sun, you will know how your son is doing.

Also, this dosage is probably the lowest. He may need an increase. You will find if there is no change in anything, then he needs an increase.

Please post as to your observations and questions because again, every one is different. He may have rebound, he may not eat, sleep, etc.

We are here if you need us.

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Logan'sMom
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Posted: 12 November 2009 at 6:39pm | IP Logged Quote Logan'sMom

I agree, I would start it on a day that you can be with him. You may want to keep him home from school or hold off until Saturday. 

Also I recommend keeping a journal of any behaviors that you see or side effects and when they occur in relation to when he gets the medication.  This will help you (and the doc) identify what adjustments need to be made.  And watch for rebound.  If it's going to happen it will usually be as the medication is wearing off.  It can make him angry and emotional.  Usually it can be avoided by changes in timing or dose.  The first time my son got rebound I didn't know what to think!  I thought the medication was making him that way, when really it was the fact that it wore off! 

Good luck and feel free to ask questions.  This site is a wonderful place for information! 



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Melatonin/ Fish Oil/ L-Theanine
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logancaud
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Posted: 12 November 2009 at 8:58pm | IP Logged Quote logancaud

Thank you all so much for your answers!! I am going to wait until Saturday for sure. I'm sure I will be back for more questions once we start.

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Logan'sMom
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Posted: 13 November 2009 at 7:38am | IP Logged Quote Logan'sMom

Best of luck!

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duffek822
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Posted: 15 November 2009 at 4:18pm | IP Logged Quote duffek822

I am new to this discussion board but have read many posts and there is alot of support on here!!!  My son who is 6 and in kindergarten was just recently diagnosed with ADHD and like many others I was dead set against the medications just something about the word ritalin scared me!!  Up until last Friday I thought my son was just 120% boy until I got his first parent teacher conference and heard the dreaded words I didn't want to hear or accept. While I was sitting in the conference I had to control myself and not let the tears flow, because I was feeling very selfish for not doing this for him sooner. I took him to the doctor and got him put on Concerta 18mg this is now the 2nd day with him taking this medicine and I notice a change in him but some not as good as others.  I notice him being very emotional (not sure if this is suppose to happen)!  I am keeping a journal with all the effects it may have on him because I know that medicines need to be adjusted to fit the person.  I am just so new to this I am worrying myself and second guessing myself if I am doing the right thing!!!  Now tomorrow we just have to see if the teacher sees a difference in him and that it will help to keep him on track with learning!!


Edited by duffek822 on 15 November 2009 at 4:54pm


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logancaud
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Posted: 15 November 2009 at 6:39pm | IP Logged Quote logancaud

Felt like I was reading my post!! The parent teacher conference last week is why my kindergartener just started on meds too! This is his second day and he is experiencing emotional problems as well. If anything does not go his way, he is crying, hard. Thats so like him. I'm hoping it will get better with time. I am also keeping a journal to show the Dr. when we go in 2 weeks. Glad to know that there are other families going through the same thing....

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