Just joined, desperately need advice!

Which of my boys do you guys think should be evaluated for autism spectrum? My insurance doesn't cover neuropsychs, also my 3yo has been through 4 evals. While I do think it is a definite possibility(and have done the online evals and he comes out with mild pdd-nos) NONE of the docs have said anything about it. They are always just focused on his speech(since that is the primary area that he is behind in)I am concerned with it with him, but I think if I even tried to get another eval for him the insurance company would come hunt me down and hurt me! My 6yo I do not think has anything on the autism spectrum. Is that what you guys were thinking too?There was a post a week or so ago about an online autism checklist you could complete to see if your child showed characteristics in the spectrum.  I will try to find it and bump it for you.

[QUOTE=psm0904]To mom of twoboys, I'd have him evaluted by a NeuroPsych for autism spectrum disorders. He has all th red flags. SID is a big one for autism.To the mom with the exposure, hat's NOT part of ADHD and I'd look into it more. perhaps he has bipolar---the kids are hypersexual or maybe also autistic spectrum disorder where the kids do inappropriate things and dont' realize it. Good luck! [/QUOTE]

 

That's exactly what I thought when I read her post!!!!!!!!!!  Good luck!!!!!!!!!

I just posted this at the Club Mom ADHD boards but this one seems to have more traffic, so hoping someone here has some words of wisdom for me...

 

Oh I don't even know where to start...

My name is Corrine, I'm 28 and my husband Josh and I have 3 kids. JJ just turned 8, Destiny is 3, and Zoe is 5 weeks old.

JJ was diagnosed at the end of last school year as "ADHD-combinde sensory integration disorder". He has had problems for quite a while but it took this long to get a diagnosis since we had to go through free services through the school systems. We are broke broke broke and our insurance is not that great.

JJ starts the 3rd grade tomorrow and I am so nervous for him. I don't know what the school will do for him now that he has the diagnosis. I called and they said they will be calling us in a few weeks to schedule a meeting but first they are working on the "high need" kids. I thought JJ was high need, but I guess not.

Life for my son is just awful right now. He is so sensitive but on the other hand he has no concept of what is socially acceptable and he doesn't seem to recognize others' personal boundaries and comfort zones. He is teased, harassed, ostrasized, and generally abused by everyone. Not just the kids in the neighborhood but some of the parents as well.

There are some teenagers and older kids that have chased him and threatened him. He is pretty gullible (for lack of a better word) so he believes everything other kids tell him, which of course gives them the opportunity to torture him in new and inventive ways.

I noticed a couple of parents on the Club Mom boards had mentioned their boys were exposing themselves to other kids... well JJ did this, too. He was dared by another child to pee in the bushes... and then to pull down his pants. Some little girls were there and he then took it upon himself to grab one little girl's hand and put it on his penis. My husband had a long talk with him about why this was not ok, and he was grounded to the house for a week (for 2 days he was not to leave his room). His explanation for why he did this was he was trying to "gross her out". He really didn't understand the sexual nature of what he did or why it was such an awful thing to do. Of course this is the way he is aobout everything... he just doesn't seem to grasp so many basic things.

Anyhow news got around the neighborhood (actually it's a giant apartment complex we live in) and now many of the children are not allowed to play with him and while that's understandable it has been hard for him to take. Even those kids that are allowed to play with him treat him so badly...

anyhow there is so much more to say but I will give it a rest for now and see if anyone has any advice for me! Thanks for reading my rant!

~Corrine

Life for my son is just awful right now. He is so sensitive but on the other hand he has no concept of what is socially acceptable and he doesn't seem to recognize others' personal boundaries and comfort zones. He is teased, harassed, ostrasized, and generally abused by everyone. Not just the kids in the neighborhood but some of the parents as well.

I am right there with ya! My son also has ADHD combined with SPD. It really breaks my heart when I see the other kids push him away just because he is so in the moment of what is going on at the time. He is a little younger than your son (He is 7) and I am worried that this is the year where it will become very obvious to the other kids that he is a little different. He is a very caring and loving boy, but he has impulses that he can't control.

I don't know what advise to give you because I am there with ya!

You and your son are not alone!!

Hi Corrine....I feel your pain!I also lived in an apartment complex with a lot of other kids when Christopher was 1year to 4 years of age.  Like your son he had no clue to boundries.  He also hadnt been diagnosed at the time with adhd/odd, but i new he had it, i was just in denial.  Matter of fact last year he started preschool in another state that we currently reside in and he would come home crying that the kids made fun of him.  But yet at other times he thought it was funny, At that time we lived in the country and our only neighbor was our landlord that came up on the weekends and had a child with adhd so it was very understandable with things from both ends.  All i can say that once they get a label i have found that it haunts them.  we have again moved to a complex and i dont let him play outside if there are other kids around for the simple fact that it really hurts there selfesteem.  is he currently on meds?  what does he take.  has it helped? 

my son used to get kicked out of daycares when he was younger that i have stayed at home ever since it was no use working and then getting the dreadful call.  now that he is in kind full days i am just praying that things go well so i can get a job at least parttime so i no the feeling of being broke. 

if you ever need to vent you can email me at cbhanson5@msn.com

Hello, and welcome to the board. I am a mom with two boys. They are 6 and 3. My 6yo has ADHD/ODD/LD, and my 3yo has many developmental delays and SPD. I can understand many of the things you have been experiencing. My one piece of advice is to FORMALLY request the IEP in writing. If you live in the states(I am not sure if you are or not) they legally HAVE to do it and will not be able to put you off. I ended up having to do that with my 6yo. They tried to feed me the same line about waiting a few weeks. Learning from my experiences with my 3yo I had been through several IEP/IFSP meetings and knew what the basic rules were. I think that should be your first step in getting your son the best help you can. Good luck and keep us posted.    To mom of twoboys, I'd have him evaluted by a NeuroPsych for autism spectrum disorders. He has all th red flags. SID is a big one for autism.To the mom with the exposure, hat's NOT part of ADHD and I'd look into it more. perhaps he has bipolar---the kids are hypersexual or maybe also autistic spectrum disorder where the kids do inappropriate things and dont' realize it. Good luck! psm090438602.1444444444
 

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