New here and needing advice

He does have rituals, such as checking to make sure the freezer is closed, constantly checking his pocket to make sure his money hasnt fallen out (and many more) He thinks that terrible things will happen if he doesnt do these rituals.  He was diagnosed last year with ocd by his therapist.  I dont think that he is on illegal drugs as he is rarely out of my sight. He also tends to obsess over things and if he took a drug I think he would become paranoid and tell me because he would be afraid that something bad would happen to him. When he is out of my sight he is at a friends house and I always speak to the mother to find out what their agenda will be.  Or he is at my home with a friend.  He does not have alot of friends as his social skills are not up to par.  The children that he does hang out with he has known since he was 3 and I am friends with their moms.  The new kids that he has met at school he rarely sees outside of school because I dont know their moms and he is reluctant to have me meet them.  So I dont allow him to hang out with these boys unless they want to come over our house.  He doesnt want that.  He wants the freedom to come and go as he pleases and I cannot allow that.  I think the children that he has befriended at school have very few limits and he is resentful that he has so many limits.  I am afraid to give him too much freedom ,as I've said he doesnt make wise choices.  And he doesnt understand social cues.  He doesnt know when someone is his friend or when they are making fun of him.  He has been invited to the park for a football game only to find that a group of boys were there that wanted to beat him up.  After this incident he started to think that fighting was a way to gain friends and he became very agressive.  It has been quite a rollercoaster of a year.He is being given medications by a pediatric nuerologist and his therapist is currently on hold because her advice is not working.  I was referred by her to a behavioral center which has everyone working in one place, therapist, psychiatrist, psychologist , nuerologist etc.. They do not accept insurance and their office  visits are through the roof.  I am looking for a psychologist, but you think that I should look for a psychiatrist?  Hi all Im new here.  Im the mother of a 12 1/2 yr old boy who has been diagnosed with adhd and ocd.  I also have two other children 10 and 6 1/2.  My son was diagnosed in the first grade and has had behavioral therapy since about that time.  He did not start taking medication until he reached the 5th grade.  He has always been a good student up until last year.  Last year he started middle school and his grades started slipping.  He sees a cognitive therapist biweekly for his ocd and he takes concerta and prozac for his anxiety.  His grades have been in a steady decline since last year and now I am trying to have him put into special ed.  He seems to have turned into a different person.  I cannot seem to motivate this child.  He just doesnt seem to care about anything.  He is failing three subjects.  He has started lying and being deceptive about things like where he is going and what he will do when he gets there.  He seems to always be making the wrong choices.  When he does well on a test I always make sure to reward this  behavior.  I do know that adhd children respond better to positive reinforcement as opposed to punishments.  Im just at my wits end as to how to  motivate this child.  I realize that he is going through puberty and that probably plays a part in his terrible attitude.  He has told me that the reason he is failing many of his subjects is because he just doesnt see the point of having to learn these things.  It makes no sense to him, so he doesnt do his homework or even try to pass his tests.  I asked him if his medication is helping him to concentrate and he tells me that he can concentrate just fine, he just doesnt care if he fails.  I have taken his video games away, and I allow him to play them when he gets a good school report.  So now he lies and tries to sneak the games over to his friends houses when he hangs out with them.  I find out that he lies more and more, and Ive been taking more and more things away from him and I find this so unmotivating and its not working.  We are in a negative downslide and I need to change things.  Even therapy is not working for him anymore because he has refused to inplement the tools the therapist gives him.  I would like to find a support group in Nassau County , does anyone know of one.  I already belong to Chadd and they have meetings with lecturers but I would like a group of parents who are experiencing what I am experiencingWhat kind of OCD things does he do? Does he have rituals? Is he obsessed with objects? Does he get obsessed over certain topics? Does he get bad thoughts in his head that he can't control? Who diagnosed him (psychiatric/neuropsych)? When was the last time he had an evaluation? A sudden change of behavior can mean many things. Sometimes kids have disorders that are hidden until puberty and then they come out, and maybe his dx. is wrong. Are you sure he isn't take illegal drugs? My daughter unfortunately started smoking pot at 12. Does he have friends? Nice friends? School gets much harder when kids are in middle school so anything that may not have been picked up earlier can start to manifest in middle school. Welcome to the board. Has the Prozac and Concerta both affected him in a positive way? Did he just start either of the meds? Sorry for all the questions, but I have a 12 year old who went through diagnosis hell and I'm trying to figure out how to help the best. My son turned out to have an ADHD mimicker, not ADHD.psm090438725.7426157407

Welcome!  I hope you find information and support here.

I, too, have a 12.5-year-old son who has been dxed with ADHD and anxiety.  He, too, is completely unmotivated, fights going to school and has done no homework for weeks.  To make matters worse, in October my son took Zoloft for anxiety and had a rage reaction.  Since then, his mood swings have been completely unmanageable and his psychiatrist now believes he has bipolar disorder.  He has recently started taking the mood stabilizer Depakote; we are starting to see some improvement, but we still have a ways to go.

I don't know what kind of doctor is prescribing your son's meds, but I would take a good hard look at that piece.  If you are not working with a child psychiatrist, I would find one to evaluate your son.  If you already are, I think a second opinion with another psychiatrist might be in order.  Concerta made my son feel flat and inhibited, and he asked us to take him off of it a year ago.  He now takes Focalin XR, which is a refined version of Ritalin that is supposed to cause fewer side effects.  While Prozac does treat anxiety, it might be having a paradoxical effect on your son -- he may be feeling apathetic instead of energized about life.  Yes, purberty can play a role in your son's new attitudes, but his sound severe and need attention, IMHO.

Again, welcome and good luck.

  

Yes, I would recommend taking your son for an evaluation with a board-certified child psychiatrist.  I think the combination of meds needs a closer look.

 

Based on his social ineptitude, anxiety level, and obsessions, I'd watnt him also seen by a NeuroPsych, as he has some red flags for high functioning autism. My son is the same as yours. He is 12 and has no clue when someone is a friend or is making fun of him and doesn't "get" social cues at all. He prefers to play alone at home. His diagnoses (wrong ones) in order were ADHD/ODD and early onset bipolar disorder. In fact, he has PDD-NOS, part of autistic spectrum disorder (atypical autism) and is more social than most spectrum kids. He also has obsessions. Most autie kids do. However, being PDD-NOS, they aren't as bad. I've learned to leave no stone unturned. This kid was on nine meds and he never needed any. He also badly needed help in school with interventions. He's doing really well now, although he's still an "odd duck."

I will begin my search for a psychiatrist. When you say that " you leave no stone unturned"  how do you know that a diagnosis is incorrect?  This is very frustrating.  I feel like my son is the guinea pig that I must learn on to get this right, and he is suffering because I cannot find the right combinations of doctors or meds or just the right thing that he needs to help him.  I went to my first SEPTA meeting last night, I did not find it helpful, but I'll keep going.  Today I started the ball rolling to place him in special education.  They have been denying him this for three years because his grades up until now have been borderline to good.  Now he is failing three core subjects and is on academic probation so they are going test him for special education.  When do you know that you have done the right thing for your child?  By the way thank you all for your support. 

[QUOTE=joesmom] When do you know that you have done the right thing for your child?  [/QUOTE]

 Welcome!

To answer your question, I'm not sure we ever do.  It's called "Mom Guilt," and it's something parents, particularly moms, of children with special needs feel from time to time.  You just keep trying to find answers and keep moving ahead.  Also, you give yourself credit for what you have done.  So, let's look at what you have done:  You had your child assessed by a physician, you tried different meds, you sent your child to counseling, you pulled your child from counseling when it was ineffectual, you used positive reinforcement to try and help your child learn appropriate behavior, you kept in contact with your son's friend's parents to keep his friendships going, you supervised his new friendships to keep him from making bad choices, you have tried repeatedly to have him evaluated for SPED services, and you now have gotten the school to agree to SPED testing. I say, "Way to go, MOM!!!"    

I think you have received excellent advice on the next steps to take, so I just want to add a few things.  I am concerned about your son's feelings of self worth and his lack of interests.  I am curious whether or not you have ever enrolled your son in Martial Arts?  It is a wonderful sport for the ADHD kid, and for someone like your son, who has been taunted and bullied, it does a great deal to build self esteem.  My son has been involved in it for three years, and it has done so much to help his self esteem and his self control.  Just a thought.  Hang in there.

 

lillian38727.3593287037

Thank you Lillian.  I will discuss martial arts with my son this afternoon.  He has tried most sports and has decided that he is not interested in pursuing sports any further.  He is on a swim team and loved to swim until I enrolled him in swimming and now tells me that he hates it.  He does have a very negative attitude and is extremely reluctant to try new things.  His newest interest is in music.  He has gotten an electric guitar for christmas and is interested in learning how to play it.  I am happy about this because I feel that music is a very creative outlet.  I will be enrolling him in guitar lessons. 

I have a question:  My children dont seem to be able to walk away from the television.  It seems like they are always rushing through their tasks(homework, chores etc.) because they need to see the next show.  My husband and I have discussed taking the television completely away from the children during the week and allowing some tv time during the weekend.  Im curious if you think this will make my sons negative attitude even more negative.  I have taken away video games and only allow small amounts of play for good grades and this seems to have made him even more negative.  I dont want him to feel hopeless, like he is losing everything he enjoys.  Do you think that this will happen if I take the tv away?  I would like your opinion.

I knew my son was misdiagnosed because I went to a conference for bipolar kids and their parents and my son just wasn't like the other kids. Those kids were mischevious, prone to meltdowns, some were sexually inappropriate considering their ages (we found some in the closets trying to kiss--they were 8), etc. My son wandered off in his own little world, playing his GameBoy Advance. He didn't rage. He didn't interact except with my daughter. He didn't want to seem to play. The bipolar kids did want to play. One of the moms asked me if Lucas had autism, and I went back frm the conference with new resolve. I'd asked and asked about some sort of autism and was pooh-poohed by a bunch of supposedly bright professionals. He had been on nine meds, yet the kid didn't rage. They mistook his "strangeness" and pouting and foot stamping during transtional times to be bipolar. In fact, he was typical autism. Sometimes you DON'T know and you have to do your homework. In my hub and my case, we'd always thought he had autism due to his early speech delays, rages at that age, late pottying, and, although friendly, desire to play alone and focus on certain things only. He also taught himself to read at two, yet had trouble keeping up in the classroom. He made ADHD kids look calm too. Autistic kids, even high functioinig, are highly sensory and he felt the need to touch everything and watch all the stimuli in the classroom, including lights dancing on the wall. His inattention gave him the ADHD dx. Then the next pro shook his head and saw his meltdown when he started obsessing over my buying him a videogame and said, "Bipolar" and put him on heavy duty drugs. BUT HE DIDN'T HAVE EITHER and I was never comfortable with either dx. Now he is a 12 year old in special ed half the day, getting autism interventions and finally improving and growing by leaps and bounds. He never rages (still pouts if he has to transition), still is a loner and a bit of an "odd duck" but is very loveable. He has been off meds for two years. There are no meds for autism, although some autistic kids do act out (about 50%) and need meds for particular behaviors. My son is doing well med free and is a happy 12 year old making good progress. You have to go with your gut, not be afraid that "the next professional may say something worse", etc. Your child is the same child he was yesterday even if he gets a diagnosis which turns out to be, in your mind, "worse." And from that day forward he can actually get the help that he needs so he can get BETTER. Never trust a pediatrician, therapist, teacher, helpful cousin, or a blurb on the internet to diagnose your child. You need the best of all professionals and even they can be wrong. You'll know when it's right. Good luck!
 

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