new to this | ADHD Information

FOR WHAT IT'S WORTH TO YA, IT'S TRUE...HERE'S MY STORY.
Hello Everyone, I wish I didn’t have to fancy meeting you all, at least not here.., …not in this forum, but here we are, all together aren’t we? How very, very sad. Well, I’d like to tell my daughter’s story and keep telling it so that other’s who may be in the same horrible boat, can hopefully gleen some wisdom from my experience, and if that helps another child, I will have made our heavenly father smile today, I hope.

My name is anita. We are a family of 5, mom/dad and 3 daughters. We live in Apache Junction, AZ and my children’s ages are currently, 13,17,20. My middle daughter Bree who is now 17, had been on ritalin from age 5-6 to age 15 and was first diagnosed with ITP at age 15, (2-1/2 years ago) thru a routine sports physical when proteins were noted in the urine. From there, several blood tests followed and the platelets were found to be lower than normal, around 80,000 at that time. The oncologist assured me (not) not to worry, and tentatively diagnosed her with ITP, that was when I first found/visited this website. At that time, I quickly learned that ADHD – treatment – methylphenidate was known to cause ITP, and low blood platelets. I went to my DR. with this, but he denied the connection and further patronized me telling me that I could still give my daughter Ritalin if I wanted to. Well, I didn’t believe him and she was removed from the medicine immediately. Eventually the platelets spiraled to the 60’s and the dr. ordered a bone marrow biopsy. In 2004, at that time the bone marrow was found to be manufacturing Platelets and an excessive amount at that, so the assumption was that they were being destroyed somewhere else in the body. This ruled out leukemia and cancer at that time. For 2-1/2 years her platelets remained in the 60-ish range.

Then recently, they have spiraled down to 37.000, and we are now being referred to pediatric/hematology/oncology, who have sent out 10 tubes of blood for testing, and are temporarily telling us that she has aplastic anemia, a rare blood disorder involving destruction of the bone marrow, and involves an inability to produce white cells, red cells, and platelets. Our child may be dying! I told the reg. Oncologist that he wasn’t fit to care for my child when with this new news, I learned that ritalin is also responsible for low red and white blood cells too. But guess what? The new pediatric doctors aren’t admitting ritalin is the cause either. NOBODY WANTS TO SAY, YES, IT’S THE RITALIN, BECAUSE THEN THEY MIGHT HAVE TO STAND BY THAT COMMENT/BELIEF IN LITIGATION! And no doctor wants a part of that! Forget that they are moraling and ethically motivated to for the 3 million ritalin users out there nationwide, oh no, cause you see, there’s 3 billion annually in the RX’s pocket – and they are – well connected to the doctor’s pocket!

Well, I have researched aplastic anemia and find that it CAN BE a direct RESULT of BENZENE. And I have now researched the chemistry/compounds in ritalin and find that benzene is an important ingredient of ritalin. All the while NOVARTIS, manuf. Of ritalin is the first to abound with comments about how long ritalin has been around and that ritalin is safe, but the minute someone makes a claim of opposite nature, NOVARTIS is the first to claim, there is no long-term data or studies to know what the effects of ritalin are in children (long-term). Well, I say LIARS! I saw a Physicians REF. DESK encyclopedia today from 1977 that had thrombocytopenia purpura as a serious side effect of the drug, but do you think that information was on the labels of the ritalin medication my daughter was taking in the 80’s-90’s? NO! It was not, and IT CERTAINLY WAS NOT ON THERE, THAT BENZENE IS AN INGREDIENT, NOR IS IT ON THERE THAT THE DRUG COULD CAUSE CANCER, LEUKEMIA, APLASTIC ANEMIA AND PROBABLY OTHER HORRIFYING AND UNTHINKABLE DISEASES. I know, because I still have the receipts!

So back to the moment. I’m furious. I’m angry, and I’m going to be the biggest anti-ritalin parent out here on the net. So, if you are just now being diagnosed with ITP and ritalin is involved in your child’s history? Run, don’t walk to the nearest 2nd, 3rd and 4th opinion you can find if necessary, and start checking the heart, the liver, the spleen, the bone marrow, and more, because I had a lull of 2 years – and perhaps that will have a deadly effect now? Could there have been something we could have been doing for her in the time period? LISTENING TO ONE DOCTOR IS NEVER A GOOD IDEA! Trust me, I have had breast cancer too at age 32, and this is the God’s honest truth….be proactive and do not trust them! Other kids have dropped dead with heart associated causes. Please I ask you one thing. Please tell 3 people about my story, MORE IF POSSIBLE, PLEASE!

Can you even imagine how we are feeling as parents? It is bad enough when your child is sick, but to think you are responsible for the demise of your very own children is hardly bearable! The bible put laws into effect for loss, an eye for an eye, a life for a life. You accidently kill your neighbors donkey, you pay for it, you do it on purpose you pay more. How much more so the life of a human being? Well, I may never see compensation from NOVARTIS for this, but WE can shut them down. One person at a time! If you will please pass my story on to someone/anyone who will listen. It’s very real, and it’s happening to us as I type, and we are real people, with a real child we love dearly, very possibly dying from a very real killer. 3 million kids in America may soon follow if WE don’t SHUT THEM DOWN! Please, Please I beseech you, tell someone, email my story, I don’t care….share it today won’t you? Also, won’t you pray for us? Breanna is scared and mom and dad and sisters are too, sisters may have to test for match – for bone marrow transfusion – and that is a whole other nightmare that I don’t have time to relay.

AND LASTLY PARENTS, THERE ARE OTHER WAYS, THE U.S. IS OVERMEDICATING. ADHD IS NOT A DISEASE FOUND IN LIFE OR IN AUTOPSY, AND YET WE ARE DRUGGING OUR KIDS FOR IT. WE AS A NATION ARE CONTROLLING THEM WITH MEDICATIONS RATHER THAN DISCIPLING THEM AND TEACHING THEM BETTER WAYS OF BEHAVIOR. I BEG/BESEECH YOU, FIND ANOTHER WAY PARENTS, PLEASE, PLEASE DO NOT USE DRUGS. I WISH I WOULD OF TAKEN THE D...STUFF MYSELF TO SEE WHAT IT FELT LIKE TO MY KID....THEN PERHAPS I COULD OF UNDERSTOOD HER COMPLAINTS!

Royleena-

Please ignore "anti-Ritalin" as this person is a troll and is trying to create havoc on this board.

Royleena, this forum is not the place to use as a venue for selling your product.  Your posts have been reported. 

Hi Thumper, I'm sortof ahead of you on the same road.  We separated when our kiddo was 5 or 6.  Innattentive type.  Took 4 years of frustrating school years to figure out that this kid really does want to do well, but the ADHD was getting in the way.  Things are so much harder for him than the other kids.  I was horrible to him until I realized his problems were beyond his abilities.  I was relieved when he got the diagnosis too.  Is is hard to get custody back in Canada?  It's nill impossible here in the states, so I wish you the best of luck.  Document EVERTHING!  That will be your best defence, and it might take awhile, but keep up the fight.  Sometimes dads are in denial.  They have a hard time understanding thier child is "imperfect" in some way.  With us, he is just like his dad, so his dad doesn't see any problem.  Oh, boy!  You'd think he'd be our son's biggest advocate, but he's just waiting for our son to "get it" with school, and I stopped waiting, and just took the reins and took control.  YOu might have to do that too.

I don't have any offereings for meds, because we are doing some alternatives, which are working.  the others will be able to help you more there. 

 I am new to this whole thing, My son was just dignosed with ADHD last month. I was very happy at first because their was finally a name for the problem. I thought I was the most aweful mom because I couldn't figure out why my son was acting out so much. But to my relief (in a way) it was the ADHD.  My ex and I seperated a year ago and I was trying to deal with my son on my own, needless to say he ended up at his fathers just after the doctor had told me what was wrong. Now my son is in a new school with the same problems as before and his father won't recognize what the doctor has said. He needs Meds. So now I am fighting for custody back of my son because he is not getting the care he needs at his fathers. Now that I have said all that I am wondering if I am the only the one out there going through this? And what Meds are the best for a 6 year old with major aggression?