For those wondering is it more than ADHD | ADHD Information
I think you are in the wrong place, wrong board. I realize you have good intentions about informing people of your son's misdiagnosis but that was your experience. Not all children with ADHD are misdiagnosed.[QUOTE=momofalex]I think you are in the wrong place, wrong board. I realize you have good intentions about informing people of your son's misdiagnosis but that was your experience. Not all children with ADHD are misdiagnosed. [/QUOTE]
what you said sums it up
[QUOTE=momofalex]I think you are in the wrong place, wrong board. I realize you have good intentions about informing people of your son's misdiagnosis but that was your experience. Not all children with ADHD are misdiagnosed. [/QUOTE]
I agree and feel that ADHD is very easily misdiagnosed. It's better to be aware of the mimickers than to not know at all. I think this thread was appropriate for those who feel their child's dx may not be correct.
This is from the ASD board. What made you know your child had ASD. Here are some answers.
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Topic: What made you think your child had ASD
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pammar
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Posted: 10 September 2006 at 7:46am | IP Logged
I just knew. Lucas came to us at age two with headbanging, tantrumming, an inability to communicate and delays.
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Pam from WI
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ryansmom
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Posted: 10 September 2006 at 8:05am | IP Logged
When he was 2 he wasn't talking much but what really did it was when he was almost 3 and I went to visit my sister and my nephew who was 4 months older at the time was just doing sooo much more than Ryan. When I got home I really started my journey with Ryan and finding out what was going on.
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Kelly
Mom of Ryan 5yr Autism
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ez62Groupie
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Posts: 71 Posted: 10 September 2006 at 8:49am | IP Logged
I was always concerned about my little guy, even though he met his milestones and interacted as a baby I felt there was something off but couldnt put my finger on it. His body positioning was sometimes odd, I didnt know anything about autism, I was worried about CP or something. Everyone acted like everything was fine, and I chalked it up to paranoia, post delivery depression, whatever. After he turned 1 he slowly began tuning everybody out (but me) and started odd behaviors. At 14 months I began researching online and the word autism kept jumping out at me. Because he was so young, I wanted someone to look at him who specialized in toddler autism screening. Dr Amy Wetherby was kind enough to invite us up to Tallahassee and they saw him at 15 months and confirmed my suspicions. Of course as time has gone on he has become much more symptomatic. The few people we told at 15 months acted like we were nuts. Now at 25 months it is glaringly obvious that he is quite different!
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IBGECKOSenior Member
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Posts: 749 Posted: 10 September 2006 at 8:55am | IP Logged
I didn't have a clue he had ASD. It never occurred to me. In fact, when he was 4 1/2 and evaluated by the school district, I was told he didn't have an ASD. Of course these were the people who officially diagnosed him as an inigma. I kid you not. So it came as quite a shock 2 1/2 years later when I took him to a private Psychologist who dx'd him ASD. Then Regional Center and the school district both agreed with the dx in their evaluations. In hindsight there are lots of little things that were obvious red flags, but nobody pointed me in the direction of ASD because he showed none of the classic symptoms. Edited by IBGECKO on 10 September 2006 at 9:43am
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Karen - Honored to be the mother of Connor, 11, Asperger's, ADD, Learning Disabilities & Raymie, 4, NT and bossy as all get out! Back to Top
Parkers momSenior Member
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Posts: 567 Posted: 10 September 2006 at 9:05am | IP Logged
One afternoon while reading a story in CHILD magazine about a little girl who has ASD(her father did the story),it hit me like a freight train,it was like somebody turned the light on for me,the story completely explained Parker.(he was 18 months at that time) I could not believe it, we brought him to his pedietrician the very next day after being up all night in SHOCK,and the ped agreed that he was more than likely autstic and referred us to the MIND Institute for a dx,then sent us right over to the lab for Fragile X testing.
I never even considered autism before reading that story,I just thought he was going to be a LATE talker, independent,and not very effectionate. That night when my MIL came home (she was staying with us for a few weeks),dh told her that I thought Parker may have autism,she went into her bedroom and came out with some paperwork that had the DSMIV for Autistic Disorder on it. She already knew it,and said she was going to bring it up,but didn't know how. What a CRAZY day that was,I will never forget it!
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wings22Senior Member
Joined: 06 January 2006
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Posts: 121 Posted: 10 September 2006 at 9:09am | IP Logged
delays and communicate with both my boys __________________
Tanya Back to Top
Donny's momSenior Member
Joined: 13 December 2005
Location: Canada
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Posts: 131 Posted: 10 September 2006 at 9:18am | IP Logged
When we got Donny (at 6 1/2 years), we already knew he was autistic, as he'd already been diagnosed.
However, we still went through a denial period! Hubby and I both
had backgrounds in working with autistic people, and Don didn't seem
like the autistic kids and adults we knew. We thought perhaps his issues
were due to his background (BRUTAL neglect, like crib-baby type stuff,
abuse, prenatal exposure to drugs and likely alcohol, etc.), possible FAS/
FAE, attachment issues, and copying his older brother who is also
autistic.
That first year we questioned his diagnosis a lot. The last two years have
been a gradual acceptance.
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Lucky mom to Donny, 9 years old, ASD, and the best kid I could wish for!
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oceanNewbie
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Posts: 2 Posted: 10 September 2006 at 9:20am | IP Logged
Starting at about 1 year my son would throw explosive fits when he wanted something even if we said yes or were getting it for him. He could not wait for us to get his juice etc...even if we were saying,"O.K. mommy will get juice for you".
He has speech delay. Didn't say Mama or Dada.
Cried everytime we changed his diaper. Cried in his carseat at all times until he was 18 months.
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SHERPER96Senior Member
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Posts: 172 Posted: 10 September 2006 at 9:28am | IP Logged
We had no clue other than speech delay; at 4 it was obvious his receptive language was off, but he still passed all the private evals as well as SD evals saying his speech delay was causing social delays.
When I questioned why he would have temper tantrums, I was told b/c he was frustrated at his lack of communication. Well, yeah, but something was going on.
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caitlinsheilsSenior Member
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Posts: 129 Posted: 10 September 2006 at 9:48am | IP Logged
Shea started opening and shutting the kitchen cabinets repetively at 11 months and always hording toys to the side of him or behind him. Aroun 15 months, he was gazing out the side of his eyes, THAT is when I knew. Also, speach delay. Like ez62 said, "autism kept jumping out at me,"__________________
Mom to Shea - Dec. 2004 (PDD-NOS) and
i'm not reading posts, but IAB, your son I will diagnose. He does not have ADHD. That kid has so much more going on, and I feel sorry for him because nothing is being done to help him beyond ADHD help. And even then, you won't put him on meds. That kid is not going to have a very good life if he doesn't get some sort of help as he is already delayed. Again, I apologize if this post isn't warranted. I'm posting these days, but not reading. Of all the kids described here, yours is the most obviously "not just ADHD." Do I know for sure what he has? No, but he needs more evaluations until you know so you can help the precious little one. Do you still forbid people from posting about ADHD meds on your site? I won't read your answer, but I'm just showing how inflexible you are about treatment options. Although I'd never do stims as fast as I did it with my son (hindsight is great
), I would use them if I really thought they'd help my child succeed and even with ASD they help a percentage of kids. Vitamins and diet wont' solve it all. At any rate, that's JMO. pammar38970.6177430556pammar wrote:
"i'm not reading posts, but IAB, your son I will diagnose."
It is one thing to support each other and provide different things for each other to consider in our jouney. However, I do not feel it is appropriate (or posible) to diagnosis any disorder on a message board.
Dealing with our kid's needs require very pesonal (and ofter tough)decisions that fit within our personal experiences and belief systems. If we medicate, we get criticized; if we don't medicate, we get criticized. If we ask for special help at school ,we get criticized; if we don't ask for accomodations, we get criticized. We can at least come to this board (usually) for support and the advice of those who are facing the same or simialr issues.
vickie38970.6996180556If Dr. Ogram is talking, that's a good excuse for bumping up the thread. It is significant as it shows how much a speech delay is a part of ASD. Also, other symptoms are featured.Why do you want to fight? It's pointless.
pammar...interesting you say you don't read any of these posts... you always have a comeback. Hmmmmm....this is getting annoying...pammar you are acting like an bully
This is getting a huge readership, indicative that people are NOT sure their kids have ADHD. See? she has said she isn't reading any of the responses to her.
I thought the same thing, about the pics. lolPammar,
You know I like you but did you get permission from the members to copy their paste their post over here. Some of those posts have their kids pictures on them and they may feel safe to post on the other site but it may bother them to be here. You may want to, at the very least edit your post and delete the pictures.
More responses to "What Made You Think of ASD." You can see the significance of the speech delay in almost all the posts.
At 2 yrs, he ripped his fingernail off and didn't notice (daycare didn't notice for a bit either). Until then, I had an idea but everyone kept saying it was because he was a preemie and needed more time. The fingernail thing jolted me out of that, and I started investigating more.
... I noticed his social was behind. He wasn't aware of things. Never responded and didn't seem to hear me calling his name (but we were doing tons of hearing tests :P)
It was more than just a preemie being behind. He also cried until about a year all the time, dr said colic, we changed formula, did massage therapy, baths everything! He cried more than slept!
Pan
Edited by Panthosette on 10 September 2006 at 12:35pm Back to Top
avalonroseSenior Member
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Posts: 218 Posted: 10 September 2006 at 12:59pm | IP Logged
Basically just a speech delay. Then, when he did begin talking, he became abnormally obsessed with "little lights" and garage doors, and haing to watch them open and close over and over again. He never spaced out or anything though, which is why we kept wavering between having him evaluated and not. __________________
Jen
DS, 12/02, mild autism
DS, 7/16/04, NT
"When all the parts of the puzzle start to look like they fit
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mental utopiaNewbie
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Posts: 10 Posted: 10 September 2006 at 2:20pm | IP Logged
An old college friend had a child about the same age as mine. She was often concerned about her child's behaviors and development, but we'd compare over the phone and I could usually reassure her because Levi seemed to be on about the same page. When they were 24 months old she came to visit me, compared the two with her own eyes (her son had just exploded in his communication and played happily with my daughter while levi cried, clung, and hid the entire week), and told me that if Levi was her son she'd be worried about him. Soon after he started echoing, lining things up, and handflapping and I realized he wasn't just a late talker.
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tiggerjnryNewbie
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Posts: 38 Posted: 10 September 2006 at 2:45pm | IP Logged
We had no idea about nicholas. we knew something was off, but every doctor we spoke to said "he will grow out of it" . By the time he was 6 and cound't go to school because he had not "grown out of it" my older sister, who at the time was working as a special ed. aide, called our school district and set up a meeting, he was dx'd by the school psychologist. He started school about 3 weeks before he turned 7. And even though he had missed K and most of 1st, they put him in with his age peers because he was really big. (since he was 2, he has looked like his older brother's twin, even today, people think they are twins but they are 2 years apart) Anyway- finding out that it was confirmed autism was a HUGE shock to me. I had learned about autism in school and it was nothing like nick. it took me a long time to stop crying when i even thought about nick or school or autism. 
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TraciSenior Member
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Posts: 1400 Posted: 10 September 2006 at 4:28pm | IP Logged
It was the repetative behaviors mostly and how I couldnt seem to get her to listen to me! I used to teach pre-school and there was never a child too much for me, and she was too much, I was overwhelmed and nothing was working!__________________
Ashtyn, Age 5 (ASD)
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pinkquinnSenior Member
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Posts: 275 Posted: 10 September 2006 at 7:19pm | IP Logged
dd didnt respond to talking or calling her name but was on the spot if she heard candy or a candy wrapper so her hearing was ok (we also had it checked)
her eye contact was bad was not redirectable and OOOOOOOOOOHHH the tantrums
speech delay also, but for a time I didnt notice anything was off even though others did, dd had trained me to deal with her instead of me training her to deal with me (and the world)
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ormomoftwoNewbie
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Posts: 19 Posted: 10 September 2006 at 8:00pm | IP Logged
I knew something was "off" from the very beginning. He was always stiff, didnt want to be held, nor put down. Cried a lot, never slept through the night, had to be wrapped in his blanket until it was no longer large enough (yet he still carries it everywhere with him hehe)
He wouldnt eat baby foods, was delayed in some fine motor skills, and wasnt babbling. So he entered ei at 13 months old. They started sensory therapy. Then we moved and put it off figuring he would just catch up one day. Well that didnt happen. So we took him to ei again, he got accepted but they never mentioned Autism, just like most of you it jumped out at me and i had to bring it up to his dr. He was referred and didnt get the diagnosis the first time because of his good eye contact
. It was a joke, but then on the second eval he recieved the diagnosis. I still wonder sometimes if its right on his good days, but on those tough days i know it is lol.
Mothers intuition 
Edited by ormomoftwo on 10 September 2006 at 8:00pm
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brown1442Senior Member
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Posts: 117 Posted: 10 September 2006 at 10:03pm | IP Logged
OMG... I just typed out this long answer and hit the new topic button... I HATE that button... I do that all the time 
Anyway... I knew Jason was different from the begining but it wasn't until I was sitting at the dinner table at work (I work second shift as a nurse) and I was listening to a coworker talk about her ASD child that I started thinking about ASD in Jason. He was just about 2 at the time. I brought up the idea of ASD at his 2 year appt and the ped INSISTED there was no way... he spent 10 minutes playing with thim and said he was talking, pointing to pictures in the book, making eye contact, answering questions, and gave him five so it was IMPOSSIBLE Then when his brother was born when he was 28 months old he started compulsively turning lights on and off... then I KNEW We went in for Matthews 2 week check up and I broke down in the office and demanded they do something about... they sent us for a referral and he was diagnosed a 2 months later with PDD-NOS.
Jason was a very stiff baby... nicknamed "baby does not bend" but he had reflux so I always attributed it to that. He met all of his milestones early except for social once he was on the later end of normal. He sat up at 5 months, crawled at 6.5 months, and walked at 10 months. While he said his first words by a year and was putting 2 together by 2 years his language acquisition and use was always very awkward and I knew that. He didn't like being aorund other kids at playgroup he'd run to the opposite side of the room. He knew all of hif letters numbers, colors, and shape by 15 months which I thoguth was really odd but my ped insisted I not worry and just start saving for Harvard 
From the time he was very small... like 3 months he was fascinated by lights, fans, and musical toys... still is honestly.
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jessm2000Newbie
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It wasn't until Courtney was around 3 that I started wondering. I remember it being a sunny day and we were at my BIL's house and they had a 2 1/2 year old little boy. He was telling me all about his pretent trip to the grocery store and everything he was going to buy and I realized that Courtney never told me stories like that. She would communicate her needs but would never have a conversation like that. She seemed "Normal" except for that one area. It was then that I realized she wouldn't tell me body parts or tell me her name or how old she was.
The first Dr. I took her to said that she was just a little bit behind schedule and to keep an eye on it. A year later a second pediatrician said basically the same thing, but then called me at home later that day (I love this guy) and said let's have her evaluated anyway. The DX'd her within a month with High-functioning ASD.
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Email this topic Vickie,
Hi. I thought you were a Vickie from here that I e-mail with, who got the same cold reception I get whenever she mentioned something that other regulars didn't want to hear. I read about half your post, so forgive me if I didn't "get" the entire meaning.
220 people read this post, and most are lurkers. While you can speak for yourself, and maybe some regulars here, you can't speak for the lurkers. You don't know what they want. I do know I get a lot of PM's and, when I get one, it is not a negative post like on my board. Most are desperate parents who know darn well it's not just ADHD and desperately need an ear. They posted on the ADHD board because that's the dx. they got or else they never heard of anything else that makes kids hyperactive. There is a serious lack of understanding of other disorders on this board. It's not this way on all boards, but this one there is. If you don't want to read my posts, you can do what I do--skip the posts. The lurkers can do the same. If you think this targeting me and fighting encourages newbies and lurkers to come out and post in public you are wrong. Many have mentioned this to me too. It is easier to just not read a post than to see a long slew of flames. I'm sorry, but flaming doesn't bother me. I don't know you folks.
Never do I diagnose definitely. I recommend (and I'm glad for the chance to do it again) seeing a NeuroPsych, who CAN diagnose ADHD and beyond. I will take this opportunity to post my favorite links. I know people go there--I see them, and also get PMs from those boards. However, there is no problem for me on those boards since msot of us recognize symptoms and are on the same page.
If you wish to continue trying to convince me not to do something, you may do so, but I'm not going to either listen or read. I know there are people out there who WANT to know if their ADHD kids really have early onset bipolar or ASD. As long as I get PMs and know there is a real desire on the part of some parents, there is a use for me here. Ok, here are the links. I suggest reading some so you all can learn why it's so important to make sure you get the right dx. and about how easy it is to blame ADHD for other disorders. If your chld has ADHD, you know it. Sorry, but speech delays are charactoristic of ASD, not ADHD. THat's usually the first symptom people notice before getting the ASD diagnsos, even if the child eventually speaks--he will remain quirky and unable to socialize, and that requires interventions for maximum results as an adult. A pill wont' cure that, although it can help inattention. Heck college kids take pills to study for tests. Stims help anyone concentrate better. They are not, in as of themselves, the whole answer, even for ADHD.
www.childbrain.com/pddassess.html
www.autism-pdd.net/forum/forum_posts.asp?...
The more you post, the more people will read this thread, which I think is important, so keep at it. It has high attention. All my threads do. People want to know.
I will not be reading further responses. My apologies, Vickie. I thought you were somebody else.
[QUOTE=pammar]This is getting a huge readership, indicative that people are NOT sure their kids have ADHD. See? [/QUOTE]
Actually, it could just be the same people clicking on the thread over and over.
Very true meg...its kinda like a car accident everyone becomes a rubber necker and takes a peek....
