My 17 year old daughter has CAPD. It was diagnosed 10 years ago. We were going to a psychologist for her ADD when she sent us to a speech patholigist and an audiologist. We took our daughter in for tests everyday for almost two weeks and then in was another couple of weeks before the results came back.
We had early idication that my daughter was CAPD ... she was a very late talker and needed speech therapy from the age of two through 3rd grade. The CAPD diagnosis was an "AHA" moment for us. If she can't hear and process the information correctly, how can she learn to speak correctly? Speech pathologists were key in treating and helping my daughter.
Now we think she never had ADD ... even the psychologist kept saying itwas like the chicken and the egg ... which came first? The CAPD or the ADD. We took her off ritalin years ago because it gave her ticks.
She does well now, she take most of her classes online because she is more successful at "visual" learning. She used to drive us crazy ... she seemed like she was ignoring us and could never follow any directions. We're now natural at telling her to do one thing at a time and having her repeat it back to us. We don't even think about it anymore. In fact, she is good at asking that directions be repeated.
Her 8 year old brother is ADHD and he is why I started visitng these boards, but I've also had the opportunity to learn more for my daughter too.
The hardest thing about CAPD is no one has really heard of it and many MANY teachers my daughter has had have looked t me like I was totally crazy when I would try and explain it to them.
One of the most profound things my daughter's psycologist said to me over ten years ago that has stuck with me is that I would have to fight for her throughout her entire educatiion. This could not be more true. We've had great teachers who have helped us and made a huge difference in our lives, but more often than not, I've felt like I'm battling these teachers and schools.
CAPD needs to be diagnosed by an audiologist who is trained and has the equipment to test him. Unless the neurologist sent him to one already, you should have that testing done.
If the school doesn't accept it as a legal disorder, you can get an IEP for his ADHD and have it address the specific things he is having trouble with. There is a way around it but if you got an advocate to help you, you would be more likely to get what he really needs.
My son has been diagnosed ADHD for a little over a year. His activity level has improved in school since placing him on medication, but he has continued to struggle with academics. Because of this, we had a private neuropsych evaluation completed last April. Unfortunately, it really didn't tell us much. We know he has an average IQ, and the testing did not show a learning disability. He is currently in second grade, and we just finished his parent/teacher conference. Needless to say, his teacher has the same concerns we are having; I brought up the possibility of him having CAPD. His teacher is going to bring it forth to the BLST team to determine what to do next. Those of you with children with CAPD, have the schools been willing to recognize this disorder. In the state where I live, it USED to be considered a learning disability, but it is no longer that way. Sorry to be long winded!!