Thanks Aweber,
I'm just concerned with all the stories I hear with the oher parents. I know every child is different, but I mainly here about how the meds are not working. My son only acts out away from home so I do believe his behavior can be controlled.
Today he did have a better day than usual. I pray it gets better each day.
I am so sorry you are going through this. Bad reactions to stimulants can indicate other problems as you are aware. Last year my daughter's failure at school cause her to talk about dying. She was very depressed and anxious due to her frustation at school. Sometimes the impulsiveness causes them to do dangerous things because they cannot see the consequences. If he is bipolar or OCD, the concerta can make things worse.
I wish you had better access to a good psychiatrist to help sort out the disorder and manage the meds. Are the behaviors while the med is still in his system, or is it when the med is wearing off (rebound)? Are there any positive effects from the concerta? These are all things to whatch for to discuss with the doctor.
Wishing you luck and sending my thoughts...
BP COULD BE A ISSUE ALSO. I WAS TOLD HEAR MUST TREAT THIS FIRST THEN THE ADHD. i WOULD QUIT THE MED. AND TRY ALTERNATIVES. MANY SE PEOPLE HAVE A HARD TIME CAUSE OF THE SCHOOL PEERS MEANESS. WE ONLY TRYED STRATTERA AND HATED THE EFFECTS OUR SON HAD ON IT. hE IS MED FREE NOW. iN A SELF CONTAINED CLASS AND DO BETTER THAN MAINSTREAM CLASSES.
thats when he was on concerta.I found out the other day that he had tried to do it at school yet they didnt tell me for 2 weeks.Im not sure if there is an underlying cause but am waiting for referal to child mental health services.He has very low self esteem as people think and tell him he is stupid!He cant read or write yet and is way behind when it comes to what he can do ie..he struggles to get dressed feed himself Soils and wets himself, is very violent.he couldnt sit still during tests even after having his meds for 30 seconds.He has been diagnosed with severe adhd and we are looking into the possibilty of aspergers syndrome,OCD ODD too. I'm not even sure he wants to kill himself..maybe its that either a its a cry for help or b he is experimenting as he has no fear of danger etc.We have twice caught him with a belt round his neck on the bunkbed and another time he wrapped his face in shrink wrap sayin he wanted to see how long he could go without breathing he hasnt said he wants to die.However im still really concerned.He does things like he stuffed my babys mouth full of bread so he could see if he choked! Have also caught him with his hands round his toddler sisters throat.Social services are little help.Homestart offered me 2 hours a week but not for cameron as he is over 5, and all the school do is interfere i actually feel like a bad parent because of how they speak to me.They go over my head even if i say no to things and its starting to get on my nerves! The head teacher reported me to social services because i wouldnt agree to her demands of stronger medication.Im really mad and confused.Its just one thing after another.All the people think they are helping but infact make things worse.He used to go to the faimly centre to help us out the woman who ran it told me adhd was an excuse for bad behaviour and i was meant to listen to her after that? I have 2 children other than cameron they are just turned 2 and 8 months, i need practical help not printing stuff off the internet , cos thats all they seem to do.Im quite young and i think this does not help.My partner works over 12 hours a day to support us so im on my own most of the time.He got expelled from school and is only going 2 hours a day at the moment.I had to take 2 small children out in the pouring down rain this morning so i could walk him to school we was soaked,by the time i had dropped him off and walked up i had 45 minutes.I wouldnt mind if i could see it getting better but i cant ..its getting worse infact.How i wish i lived in usa where they seem to listen!Thanks one and allsorry to hear about your problems.i have to say it does sound more than ADHD,it would explain the depression and other reactions you described.
i don't think daytrana patch are in britain but i could be wrong.
have you tried carer services(it is carer scotland here)they can help you with finding help with cameron and put you in touch with other organisations,i even got free massage therapy for myself.
it seems to be different here schoolwise,take the 2 hours for the other kids to make it easier and .
sorry to ask this if you already mentionned it.has he been formely diagnosed ,it does not matter if he has not.get all the names of social services,homestart,school ect....get the headteacher to put in writing why he expelled him and that he won't take him back for more than 2 hours.the more i read your story,the more i think,no i am sure you should apply for disability allowance,we get it for jude.you need to prove he needs care 24/7,it will be easy for you for what i read,write down everything he has done and send it to them at the same time.
you get £250 a month for the disability allowance,then because you get this you get £180 a month carer allowance,your tax credit will jump about £150 more a month.this should help you and take the heat of your husband.we use the money for things to do with jude,we pay for massage therapy,movement therapy,we also paid for our daughter to spend time away as she needs it,we took them out a lot during holidays and it helps pay for all activities,we also got a climbing frame to channel his energy.there are childminders who specialise in special needs children.it would give you a couple of hours.use it for driving lessons,taxis when it is raining.
My son has been on medication since May this year and to be honest i cant see any difference when he is! We tried Ritalin at first and it worked for maybe a week, we was then changed to concerta xl 54mg he was still hyper innatentive bad behaviour etc but depressed and even tried to comit suicide whilst taking it he's only 6.So were back on Ritalin playing with doses and times.He finds it hard to swallow large tablets ie the concerta so he is on the short acting ritalin takes it 8 am 12 4 pm .Anyone else had trouble with medication quite frankly he is wild and im struggling to cope! Have you tried the patch? It's called Daytrana, but the active ingredient is Ritalin. We've had success with it...Hi everyone,
Have anyone heard of a young child being on Provigil? It' s for people with narcolypse however you spell it. I was told it would have an opposite effect on my son. I for one was against meds. However, the school and the prospects program told me there was nothing else they can do for my 4 year old son. I guess kicked out of school and the program if I don't put im on something to calm him down. They say he has ADHD. I am tired of getting calls to pick him up for spitting, biting, running out of the class and being distruptive. He do work well one-on-one. These things he do not do at home, they say he gets stimulated with different surroundings. At home he can stay still, sit calm and listen. I don't understand why he's a different child in school. I have been so stressed and I put up a fight about this. Now I feel I'm all alone because the school and the program now are on one side. Well I started him on it this morning I hope it does something because I don't plan on switching and trying new things on my child and also for a long period of time. This is what the doctor is saying if this doesn't work to try other things. I'm like "I don't think so". Anyhow, just wondering if anyone know someone who has experience with this Provigil.. Because he is only 4 they wanted to start him off with something light. I pray it helps cool him down so he can focus.
Claudia
I am on Provigil--however I am a grown woman who has Narcolepsy. I don't know how it works in ADHD kids, but my own personal experience with it has been good. I do not have ADHD. I NEVER feel "weird" on it. I can't tell it has started to work after I take it. It is very subtle. Yet--I am more awake during the day and more focused and "in the game"--whereas before I felt like I was in some kind of fog.
Sometimes, we have to be willing to try different things to see if there is a positive change. You want a positive change--and some medicines just aren't right for some people. It is oftentimes a game of hit or miss, but it is a game most of us are willing to play in order to help our kids. In the big picture---it all boils down to helping our kids---and if that means trying a few different medicines until we find the right one--well, sometimes we need to do it. If you had a vision problem, and the glasses you ordered were the wrong prescription, wouldn't you want to get the right one?
I hope you find some help.