PHOSPATIDYL SERINE lifeline! | ADHD Information

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I am going to post this here as well as the other amino acid thread.  I think we all need to get the test before we start supplementing.  I had a very expensive test with pages of diagnosis.  My son will be on a whole new regime of supplements.  BTW he is very deficient in zinc... And I have been giving him zinc for years, sort of off and on but....
Anyway some kind of test needs to happen to know just what is low and not high.  I gave my son tyrosine several months ago but stopped as it did not help, and he is actually high in that one. Fortunately we did not get a bad reaction...

Well my sons plasma amino test results were finally explained to me today.  He is way off balance!  There were three sheets of graphs and only one had green which is the correct/normal balance.  He is in fact low in PS but that is not all.  That expalins why I saw some improvement but not as much as is needed.
Alanine and b-Alanine were close to normal as well as tyrosine. 
He is low in:
Histadine
Serine
Taurine
Arginine
Ornthine
Methylhistidine
Valine
A-Amino-n-butyric Acid

And high in:
Citrulline
Gamma-aminobutyric Acid
Ethanolamine
Phosphoserine
Phosphoethanolamine
Currently overwhelmed with the results but my Doc has a plan. 
 

Glad to see the results showed lows, if only so you can now specifically target what his system lacks.  We are seeing a ped. next month hopefully, and will get the amino testing done then.  Be interesting to see if my son has more than just a deficiency in PS as well, I wouldn't doubt it.

I totally agree, a full AA testing is crucial to ensuring you are supplementing the correct thing, be it PS or anything else.

I just wish my dr wouldn't look at me like I have 3 heads when I asked for my son to get AA testing. Oh and while I'm wishing, I wish the medical community would be more inquisitive into why children have the issues they do - Re: TEST them for deficiencies.

 

 

Well I was very surprised at the results.  I saw the test from Jeli's son and there were only two aminos at the bottom of the scale.  I expected the same... So we started Thursday night and yesterday was a pretty regular day.  He snapped at me a couple of times but not to bad.  This morning he actually condescended to play with his younger brother.  I am waiting and watching!  Calico is getting good results.

Hiya, have sent you a private message with where to get PS. Good luck and let us know how you get along! xx

Yes, I'd strongly suggest you read as much as you can.  The 'net is a godsend in that manner.  While what one of us here does, may or may not work for your child, and you need to REALLY observe your child very closely.  That said, if it appears that your child displays many ADHD traits, then I trying the PS could not hurt.  Just remember, in combination with the Omegas as they seem to maximize the PS effects.  Good luck to you, hoping it turns your life around as it has mine/ours.

 

Jeli, can't remember if the FDA trial is posted anywhere in here, so I'll post it again and ensure it is in my blog thread as well, for anyone out there interested...

http://clinicaltrials.gov/ct/show/NCT00418184;jsessionid=444 A12607E825CC6C842719E5CE23FFE?order=48

 

Hi, I was wondering where you all order the Phospatidyl Serine.  I'm going to look in to it and hope it helps our daughter with her issues.  She has had severe rages in addition to ADHD-type issues. (she hasn't been formally diagnosed, maybe because she's only 4 1/2?)  Does someone have a good site to read about the possible side effects, risks, etc?  I know I should read through all the posts but don't have time right now.

Thanks for any help!

Kathy

 

 

Good morning! BL so sorry you are not having the same good fortune as us! Oh dear, let us hope that the tests show where your pot of magic lies!

CR, yea giddiness is usually a good sign! We got the light headed, giggly drunk feeling but it only lasted a couple of days BOOOOOOooooo, saved my daughter a fortune in the pub! Soon wore off though. Just took our bodies time to adjust.

BL let us know how you get on, crossing all fingers and toes for you!

mwah

CR, great that it took the edge off a pain poster!! I know what you mean. There is a 'wolf type character on another forum that I use, I used to get really cheesed off and airiated but now I just do not bother at all! Power to PS. Actually this forum is probably the only one I use regularly now as everyone is sooOOOO NICE on here!

i am waiting for my PS 500mg to arrive

my son is 9 yrs old, about 35 kilos (4.5 stone) and tall for his years.

my idea was to start him on 1 tablet of ps 500mg in the morning and his 500mg dose of fish oil in the evenings

any better suggestions

maria x

Hi gidget63

Sadly you cannot get PS or SERINE in the health shops. There seems to be nowhere that you can get it over the counter without special order and then it is soooo expensive.

The patent is owned! Company already owns it and I reckon knows what a treasure they have managed to get their hands on! The net is the only place I know at reasonable prices. I have pm's you the site and product we use. Again some folk use different brands etc but we love this one.

Good Luck and let us know how you get along!

XX

Hello, well, I tried the PS complex I ordered online.  It has 100 mg of PS in it.  When you say to try 500 mg, is that pure PS or the complex?  I didn't see much difference in my daughter.  She was a little calmer but then again, I don't want her to be like a vegetable so suppose I shouldn't complain.  I will keep trying it ad if she NEVER has meltdowns or "happy tantrums" then I guess I'll know it works.  She did sit down and shuck 8 ears of corn without me asking, even putting the husks in a bag (which I suggested she do, the bag part).  So that was something different, I guess.  I have been putting the PS in about 1/2 tsp. of peanut butter. 

Should I try the pure PS or just keep with this formula for a bit?

Thanks!

Kathy

 

Just started reading these posts and am excited about the thought of PS.  My son is 6 yo and is on ritalin, working well in school, but not gaining any weight and rebound!  Problem is trying to find a doctor willing to run test and getting clearance from my son's cardiologist ( who will probably think I am crazy!)  My son has a severe heart defect and is on asprin and enalapril (blood pressure med).  So I don't think I can even consider doing this without approval, but would love to try.  Are there any other heart kids out there, I know the incidence of ADD/ADHD/LD  in cardiac kids is a whopping 70%, so I can't be alone.

Trisha, mom  to Connor 6.yo, ADHD, Calvin and Reese

Just remember, from what I've read, PS isn't recommended when there are blood issues like use of warfarin for blood thinning. Glad to see you here though, one way or another, this is a great source for info.I have been thinking about the blood thinning situation.  My son is on aspirin as a preventive for strokes, don't think adding a phospholipid would be in his best interest, bummer.  His unique circulation from the 3 open heart surgeries makes him very high risk for stroke.  But I can continue the omega 3's that has to help in some way.  Since reading this list I have found some easy ways to give the salmon oil, I originally just tried the big old fish pill, let's just say that did not go over very well.  It's funny because most of the "heart" moms worry about their child's heart defect, I  just worry about my son's behaviour forgetting his heart defect (well most of the time).  Oh the stress of an ADHD child, if one more person tells me "he's just a boy"  I think I will have to strangle them!!! (LOL)

After reading the last 44.....GULP! ...pages.... of this topic, I realized that maybe a senior member should start a new thread explaining all the abbreviations to us newbies...LOL

I really had to 'guess' at what DS, DD, DH, NT's were!

Anyone interested in taking this on?

Hmmmm Dear Son, Dear Daughter, Dear husband,  NT... let's see Nutrition___?
Natural ____?  Neuro therapist?  Help!!!!!
Kudos for sticking out the 44 pages....
Sparklie, I have a cyberpal in Australia that may be looking for info on how to get the NT or AA testing done there.  Have you come across any OZ connections I can pass to her?  Like which of the urine or blood levels is more easily obtained there, or anything else helpful? 


Hi everyone, my my everyone has been busy!! Great to see so many new names, dp you are completely right the only contraindication is blood disorders and the usage of anticoagulant medication. Aspirin? Mmmm ya know I would deffo get an opinion off a Doctor before anyone started that is for sure. The best idea of course is to get a blood test for baseline levels.

I agree this thread is getting to be a giant! I am happy to ramble on about PS for ever as I LOVE it Soooooo MUCH, happy to start another thread. Give us some ideas of content and happy to oblige if you would like. Any other volunteers please be my guests!!

Just to update you folks on what is going on here in the UK. Decided now that since reading so many positive comments and whooops of delight due to PS, that parents really do have the right to choose. I have contacted the national newspapers here and I am happy to report ( cross fingers and pray) that one of them has agreed to do a pretty big article. I am due to be interviewed tomorrow so will keep you updated!

I know that another FM has contacted Oprah! Nothing like getting to the top straight away but GOOD FOR THEM!! Delighted that this is working for so many others. Believe it or not I was terrified to post this thread in case everyone thought I was ready to be sectioned! Relieved that it is turning out so brilliantly for so many others.

I implore those of you who are singing praises of PS and want to see routing bloods done on these children to SHOUT THIS FROM THE ROOFTOPS. Who cares who shouts first, just as long as the message gets out.

You guys all over the world are great. The Brits here are so slow on the uptake! This is such a simple and easy solution to such a helluva problem, not a cure of course! Personally I like being a jellibean! For newbies, those of us on the AS we call jellibeans and those Neurotypicals (normal) are called marshmallows! Sounds much nicer than all the horrid labels they try to pin on us! Just jumping jellybeans all multicolured and unique, just bounce a bit too high sometimes!

Anyway wish me luck tomorrow! Will keep you posted. Oh by the way Serine is now being advertised on US TV for fibromyalgia! Just thought I would add that! Very interesting eh!!!

 

Ooops just forgot to ask, timzmom, you saw the advert I think for fibromyalgia, you did not happen to remember what it was called and who manufactures it do you? This is the tele ad in the US? Sounds pretty fascinating to me, can you get it over the counter? Ooooh do tell more PLEEEEEZE, THANK YOU XX

Ok, I have ordered the PS and should get it by Friday. I hope to give this a try over the weekend. I will update y'all on Monday.

PRAYING and crossing my fingers!

Sparkli, just read your post about the person with Chronic Fatigue.  I don't remember that being mentioned earlier in the thread.  Do you have some links on how it is supposed to work?  My dad's 2 younger brothers both have FMS and CFS, seemingly tied to auto-immune disorders, wondered where the PS affects that.  By the way have my husband on PS now for memory issues that I believe are tied to adult ADD.

Thanks

Cindi

HI everyone.  I haven't written  for a long time - been a busy summer.  Now that my kids are back in school I thought I would check back.   PS is still working great for us.  I took by younger son (age 7 only add not hyper)  off PS for a couple months.  I wasn't sure it was helping that much and it is expensive.  When he started school 3 weeks ago, it wasn't very great.   After 2 weeks, I put him back on PS and things are much better.   I am so thankful for the PS.  My older son has really been helped by it.  

Man! That's what  I wanted to accomplish today - get a Mag.Cal to go along with the PS. Oh well, that'll be tomorrow' to-do job.

 

Interestingly, the NMD that my son and I are seeing, he started on the NeuroScience stuff himself, has he suffers from chronic fatigue. He thought he ought to give it a go so that he could speak from personal experience how the amino acids can so help someone with such an issue!  He really likes the results he is getting from the program.  I didn't ask which one specifically he takes now, he is just on a maintenance dose after following the protocol.  This is such cool stuff!  

Welcome back 6kids. We are still in the middle of our summer holidays here, kids all over the place and it continues to rain! Groan groan.

I agree PS is not the cheapest preparation on the market but it is like the fountain of life for us

Glad it is really helping you now albeit a few hiccoughs at first

I have just had an email from the great guy who suffers from CFS. He is now taking up quadbiking and reading his emails I cannot help but giggle. Lots of Pheeewwwwwws and Whhhhooooooaaaaaa not to mention the WHeeeeeeee's and whoops of delight at suddenly being able to live again.

He mentioned that the PS is being enhanced really well with Magnesium supplement. Can't comment personally as thankfully I don't have CFS but thought it would be useful for the folks that are thinking of trying it too. Interestingly he is ADHD aswell so maybe we should all be trying it with Magnesium. Actually maybe some of you are already?

DC get Magnesium separate from Calcium.  Give cal mag at one time and mag alone another.

<<DC get Magnesium separate from Calcium.  Give cal mag at one time and mag alone another. >>

Which is best for sleep, cal/mag together or just mag alone?

Sparkli,

I had just tried sending you a PM for the website that you use to order the PS but your box was full! LOL

Could you or someone else who has it, please PM me with the site?

Thanks so much!

Hi there cndij! Yes it is great aint it!! I am posting ians post again on here! It is somewhere in the 43pages but this is it for ease!!

Chronic Fibromylagia aswell! Google Timmy Bingham Prof Peter Clayton Great Ormond Street Hospital! This was a lad struck down with a real severe form of ME? Confined to a wheelchair given serine and NOW he is moving around, talking etc! Amazing!

Anyway here is the post I was referring to!

Memory? What memory! My hippocampus burnt out ages ago BUT thanks to PS it has been given a kick start! How exciting!

Hope that helps, take care and good luck! xxxxx

Forum: Alternative & Complementary Medicine
Topic: THE MIRACLES OF SERINE!
Posted By: ianjcrosby

Hello all.

I've been on this for a week now and the effect is INCREDIBLE, but not in the way I expected!!

I'm ADD but with a small h too. I have also had Chronic Fatigue Syndrome for the last 6 years. Basically, the first day I tried this supplement, I was in a really bad mood because I thought it was making my ADhD worse- until I realised it had actually COMPLETELY taken my CFS away!! Absolutely and totally! The bad mood was due to me actually having the energy to be ADhD!!

I've been set free!!! Totally landscaped the garden in two days and went cycling for the first time in 6 years (I used to be a professional cyclist).

This feeling probably wont last forever but, for now, I LOVE HAVING ADhD!!!

THANK YOU THANK YOU THANK YOU THANK YOU THANK YOU THANK YOU!!!

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx xxx

Ooops here is something I found out about Fibromyalgia!! Hope that helps aswell, I will clear off now and give someone else a say!!

LOTS OF LOVE XXXX

Serine and Fibromylagia
Interestingly, several studies in the past have revealed low plasma levels of amino acids in those with Fibromyalgia. Two studies reported in the Journal of Rheumatology, one done in Texas and another in Illinois, found decreased levels of various amino acids including serine and tryptophan among groups of FM patients. The Texas study results published in 1989 showed that "

atients with [FM] exhibited significantly lower levels of total serum tryptophan as well as six other amino acids" including serine. Likewise in 1992 it was reported that the Illinois study found that in addition to low plasma levels of tryptophan "plasma ... serine levels were significantly decreased" in those with fibromyalgia. Hypotheses that these low levels of the precursors of serotonin indicate that serotonin itself also must be diminished in FM have since been proven correct. Similarly it has been reported that 5-HTP, a necessary intermediate in tryptophan's conversion to serotonin, improves FM symptoms.

------------------------------------------------------------ ------------------------------------------------------------ ------------------------------------------------------------ -----------

Just keep in mind, that (my opinion here) you'll get maximum effect from the PS, if you've had Omega in your system for awhile.  I'm figuring the FDA trial wouldn't have thrown in the Omega if it wasn't necessary for the PS to work...

Oh just popping out and then diaperchangers post came through! Mmmm maybe I will start supplementing with Omega aswell then! We do PS raw and it has AMAZING effects for us. Maybe the extra Omega will boost our already turbo charged boosters! Oh heck I will be visiting you lot by my own power soon!

Thanks for that, got me thinking!! xx

Diaperchanger, just read some of your other posts and noticed you were a teacher! In behavioural modification!! Wonder how many of your class would benefit from PS? Just a thought!!

xx

You guys are so funny! What I thought was interesting in the powder I was taking, when I read (it was in a frenzy) I though you took *around* 500 mg serine *or so.*  The serving size of the powder, now you did not misread what I wrote, two thousand two hundered and twenty six milligrams of serine!  (2227 mg) How does that compare to what you take as the supplement?  Im just really curious. Maybe the label is making me think, I mean a steak dinner doesn't have a label, and there is probably lots of amino acids in there! LOL.  Just wondering if this is an amount, or a way that it could be taken in, in a more balanced way, as a food source?  Someone had posed me the question, where DOES the amino acids come from?  In the supplements are they synthetic or food-derived? 

In light of diaperchanger, I do enjoy taking the drink in the morning, in lieu of a cup of java! 

Jellibeanmomma, I'll trade places with you, we are in the dog days of summer, without a raindrop in sight.  Even the saguaros are drying up! 

 

 

CR, send me some sunshine and I will send you heavens water! Good SWAP eh! xxxx

Well I have just been out and bought up all the large free range eggs! If I had land I would have got chickens! One of our advert campaigns was entitled "Go to work on an EGG!" seems like it could be go to school on an egg too!

DC, your blog is enlightening! xxxx

Hey everyone! Just little old me chiming in! XX from WI!

I have been reading up on juicing! Was wondering if there is any other veggie or fruit that contains SP? I also read that the vitamins and minerals we get from animals is kinda second hand! The best form is the fruits and veggies we can eat raw! So What is the chicken eating to produce the PS in the eggs? Or can you drink a combo of vitimin rich in this or that to achive the PS?

Anyway just some thoughts running through my mind as I read along! I have also noticed that DS did better at school when he had a breakfast of eggs. I thought that it was just the proteen bost!

I just read through this thread and I am so very, very excited to try this PS.  I ordered it a few minutes ago and will be having it express Next-Day shipped to me.  I am crossing my fingers that it will provide me the needed relief from my ADHD so that I can work without interrupting myself.  As I am a medical transcriptionist I get paid on production and my recently diagnosed ADHD has been a real stumbling block for me and has kept me from reaching my potential in my work field.  More than that, I am excited to be able to get to a point where I am not constantly yelling at my kids, being reduced to tears when more than one person talks to me at a time, and the thought of being able to find my car keys on any given day...well, the thought is almost too much to hope for! 

[QUOTE=BL Moretti]Oh one more thing.  The first couple days I took the PS I felt very slightly anxious like too much coffee. I never had any problems swallowing it however I can down a whole handful of pills with nothing but a swallow of tap water.  Yuck!!! [/QUOTE]

I felt like that tooooo!!!!! How funny, maybe that is the 'norm' then!! I had a few shakes, kind of teeth chattering shakes? It was not unpleasant, just made me giggle a bit, actually I do get a bit giggly on it aswell, do you BL?

PILLS + ME = groan groan,

PS + ME = please sir, can I have somemore!!!!!

Night night rest of the world, UK off to bed now!! xx

 

Good morning Calicorose!! Just woken up here in the UK to .....................rain! AGAIN! Groan, groan, there are only so many times you can take your kids to see Harry Potter!

My jelibeans have been on PS now for about a year! I have read the effacy studies on some of them like you BUT so far touch wood and cross fingers we are keeping on going with the same great results. My sons bloods are now 99 and he was prior to PS supplementation 79. Normal range is between 90 - 290 so we know we are not overdosing him. Actually we are JUST giving him just the right amount to keep him in the safety zone!

So glad calicorose that you are all for the testings too. Could not agree with you more. these tests are inexpensive and phew do they tell us a lot!!

I have certainly resigned myself to a lifetime (whatever I have left) and my son being on PS indefinately. Would like to get the treatment funded for him especially though! It is no different to diabetes really, so why should WE pay for OUR lifeline? And have to fight for it?

I will continue to do whatever I can here to spread the word although someone said to me that if it had been found in  a lab surrounded by a research team it would be front page of the papers! Just because it is US, parents! not worth as much publicity! CRAZY EH?

I have been in contact with the poster who has Chronic Fatigue Syndrome and is now taking PS! He is TOTALLY BLOWN AWAY BY IT!! Doing all sorts of stuff he had previously given up on! He will post it on all the CFS sites, he says it is a lifeline that he does not want to let go of!

SO TOGETHER LETS SHOW THE WORLD WHAT HAS BEEN KEPT SECRET FOR SO LONG!! PHOSPHATIDYL SERINE!!! HURRAY!

Still raining here, typical, kids summer holidays washed out already!! England!

You all have a good day and catch xxxx from UK XX

[QUOTE=diaperchanger]I'm just wondering if anyone else out there, has tried this, and can share their experience, positive, negative or neutral.  [/QUOTE]

I have tried this myself for a week just by itself, and my son who is very adHd and for me and my son, this has absolutely NO effect on either of us.  I am so disappointed.  (The only thing that I noticed is that these little brown pills are really sticky after you swallow them.  On 3 separate occasions I felt like it was stuck in my throat near my voice box for about 10 minutes.  Anyone else have this feeling?)  I did not have the neurotransmitter test, but after reading this thread, I decided to give it a shot anyway to see if it would work.  I wonder if someone should create with a polling question to see if they have tried it and what were the results (awesome, great, good, poor, none, etc.).