Good luck trying it over the weekend. I would have been pissed also if the doctor made a mistake like that!!!!
My daughter, age 6, just started Vyanse yesterday. So far she has had two great reports at school and is doing very well at dance. This was our third medication to try on her. I fought medicating her all last year, working with supplements, herbs and a homeopathic doctor. Nothing worked well enough. Our first try this year to medicate her (or have her be placed back in K) was similar to yours, she freaked out and hallucinated. It was awful. We then tried Adderall and that was a nightmare, she became angry, aggressive, and mean. This was our 3rd medicine and I really like it. It lasts all day, there is no rebound, and she is calm and even all day. She is on 30 mg.
Good luck. I hope you get the kind of results I am seeing. It was a difficult road, but finally hopefully, some hope.
[QUOTE=NicInNC]Thank you for the replies. DD was up until 3am this morning. That is so unlike her. Her normal bedtime is 8:30 and I have never had problems with her going to bed/sleep, so this was highly unusual. I'm not even attempting to wake her up. After all she went through last night, she can just go to school late today. My heart breaks for her.
The ped gave us the name of a new psychiatrist, so I'm going to give her a call and see if we can get in soon to see her. [/QUOTE]
).
Is this normal? Will it pass? I know this is day one and things can change a lot within a week or two, but I was wanting to know if anyone elses child or themselves acted like this at first?
DD was diagnosed as borderline "hyper active"...her diagnosis is more ADD without the hyperactivity. Don't get me wrong. She has always had a lot of energy and there are times that she's wayyyy too hyper, but not daily. She's always been the type of child that is full of life and constantly on the go. I don't want ALL of that to go away. I don't want her to be zombie-like. Please tell me that this will probably pass.
I don't know about Vyvanse specifically, but I would try a different medication completely. You could get something like a really low dose of Ritalin LA (long acting) or Daytrana to try out. It seems like it is still too much for her. What I personally like about Daytrana is that if you start to see the zombie behavior, you pull it off, and they are back to normal in just a few hours.
Just now getting back online after the weekend. ((NicInNc))
My daughter (age 6) has been on the Vyvanse for a week today. I have also noticed that on some nights, not all, she seems to rebound from it. I thought this medicine was supposed to not cause rebound? She also had a bad day at school yesterday but had a good one today. I don't like the rebound effect and hope it goes away. Does you daughter lose control when she rebounds? My daughter seems to lose control of her mouth. It's a difficult time.
"She was aiming for perfection (she had to draw a scene from a book) and I guess she wasn't happy with her work. I kept telling her that it looked wonderful, but she just kept getting mad and ripping it up. I finally told her to go to her room until she could calm down enough to work on it without getting angry"
Oh my gosh, that sounds like my daughter. This is usually what causes her meltdowns also, striving for perfection, then getting frustrated and ripping up her papers. I keep telling it looks fine also but that just seems to make her more angry. What is it with the ADHD and them having to do their school work perfect?
[QUOTE=NicInNC] Thank you for the replies. DD was up until 3am this morning. That is so unlike her. Her normal bedtime is 8:30 and I have never had problems with her going to bed/sleep, so this was highly unusual. I'm not even attempting to wake her up. After all she went through last night, she can just go to school late today. My heart breaks for her.
The ped gave us the name of a new psychiatrist, so I'm going to give her a call and see if we can get in soon to see her. [/QUOTE] Hi all-
I want to get in on this conversation. I have been following your posts and they are very interesting to me. Not sure how much background you want, but the short story is my son w/ ADHD was on Focalin XR + short acting for 4 years. We JUST switched him to Vyvance because the Focalin was wearing off too quickly. He was taking Focalin XR- 2X's daily--YES, I said 2X's daily on top off another 20 mgs of short acting. Anyhow, we met with his Psychiatrist this week (NOT PEDIATRICIAN) -that's another story--and he suggested we try Vyvanse. He put my son on 30 mgs for 5 days, then we go to 50 mgs for 5 days then to 70 mgs for 5 days...We are day 2 on the 30 mgs....He told me not to expect anything too wonderful right away..It takes some time...We'll see....On another note, he also had tried Adderall, Concerta, Straterra and the Patch..(the one that pediatrian never heard of!)..I know how you both feel as this has been a long winding road that we just take one day at a time. I look forward to reading more on this forum. Take care and good luck...oh, one more thing..my son had also been taking Melatonin for several years only when he has trouble falling asleep..It's another thing that his Psychiatrist (NOT PEDIATRICIAN) suggested..It has been wonderful!
AMom2Two, Do you live in NC because if you do, we need to get together for support. Our daughters sound so much alike! My dd used to not care much at all about her school work. Now she is constantly wanting perfection and is worried all the time about her grades. I'm glad that she actually CARES now, but it's almost as though it's bringing on anxiety over it. Does your dd literally lose all control when she had a rebound? Mine does. She' screams and cries. This morning, she was WIDE OPEN hyper when she got up. That's a first. She used to be grumpy and miserable in the mornings. Now, she's hyper and running all over the place. I guess I'd rather she be that way than grumpy though. I finally bought some melatonin today and am going to give her one tablet tonight around 7pm. Maybe it will help her go to sleep a bit earlier. This 10-11pm business has GOT to stop.I can relate to your daughter there. The meds are finally clearing her mind allowing her to focus. With me I tend to hyper-focus on things of interest to me to begin with (without meds). I'm also a graphic designer and I too get very frustrated when I'm creating something and it's not working out how I want it to. That's normal to me. Vyvanse seems to make me hyper-focus more on things when I'm taking the higher dose (still working on it to see if that's where I want to stay at). Today I tried something different.. 2 30mg caps and opened another one and disolved it in 2oz of water and drank 1 oz so it would be 75mgs instead of the 90mgs. Not sure I care for this dose though, it seems to distract me too much and I haven't gotten much work done today.It definitely sounds like your daughter was having rebound as the meds wore off. The appetite suppression is commom with all stimulants but does tend to get better after awhile on the meds. I agree with all the posts above. I do think 50mg is definitely too high to start a child who has never taken meds before. SOme of those behaviors I saw when my kids tryed vyvanse but not the other stimulants. It seems different to me. My son literally talked the ENTIRE day he was on vyvanse. He does do this on adderall XR. My dd didn't do well on vyvanse either but she has had success with adderall and currently concerta. So hang in there maybe the dose is too high or maybe vyvanse isn't the right medication for her.
Good Luck!!!!!!!!!
You're not alone.. I don't think any parent WANTS to medicate their child. Nor do most go into it lightly. I certainly felt the guilt and such when my now 18 year old son started on meds when he was 6 for ADHD.Nic - I think you received a lot of good support and advice. I hope you are feeling better. I feel bad that you struggled with the decision to medicate and had a somewhat frustrating experience your first time out (and I want to thunk that teacher on the head for her lack of support!). I'd echo Joy2 on the suggestion to consult a psychiatrist if your daughter's pediatrician prescribed the Vyvanse. My ped did not feel comfortable diagnosing or giving new med prescriptions for ADHD to either of my kids (she's fine with doing the refills once they've been on a med for 3-6 mos). She's a great pediatrician, it's just not her area of expertise, and psych meds are not something you want to mess with unless you know them well. Anyway, I thought it was amusing when I brought my kids to a new ped this summer (mine went on maternity leave) and she'd never heard of the Daytrana patch. Later she asked me to write down the name -- she mentioned it to the other peds and they'd never heard of it either!
Good luck, I'm sure with a little adjustment you'll find just the right dose and med for your daughter.
I also struggled about giving my grandson medication. We started almostHi,
I feel for you. But, that dose does seem very high. My son's doc (psychiatrist) always starts low and builds from there. However, my daughter is also on stimulants and her ped starts much higher than my son's doc. I can't remember but I think it was 30mg of Adderall was the first med we tried. What a nighmare. She talked way too much and was angry when it wore off. She even hit and kicked me when she didn't get her way. She had NEVER behaved this way prior to meds. We changed mg to 20 and started her on Ritalin LA and it is perfect. She is doing great in school and has no rebound. I do give her 2mg of chewable melatonin to sleep. Please don't give up, finding the right med is difficult. Most children try several to find success. Good luck.
Thank you for the replies. DD was up until 3am this morning. That is so unlike her. Her normal bedtime is 8:30 and I have never had problems with her going to bed/sleep, so this was highly unusual. I'm not even attempting to wake her up. After all she went through last night, she can just go to school late today. My heart breaks for her.
The ped gave us the name of a new psychiatrist, so I'm going to give her a call and see if we can get in soon to see her. Hi,
I just wanted to say please don't feel bad for trying medication. I will never forget the first day we gave our son medication. I felt like I was failing him somehow, taking the easy way out, not sure how to explain it. After making peace with medicating and seeing what dramatic results it can have (mostly positive), and felt much better. Even at 6 he was able to tell me how much better he felt to concentrate, to be "still," to have people react to him in a more positive way. Soon after my daughter was diagnosed and I wasn't as conflicted because I saw that seeking medication was far better than the family battles and difficulty with school. We've tried a few different meds -- you don't always get it right on the first one, and sometimes you have to adjust dosage. Reactions such as dizziness are common (maybe too high a dose, ask your Dr.), as is loss of appetite (both my kids have had that, but my daughter seems better at finding something she will eat despite not feeling hungry. My son eats nothing in the middle of the day :-( Excessive talking might also be an indication that it's too high a dose. The mouth movements and rocking don't sound usual. They warn that some stim meds can bring out ticking, so again, I'd talk to your Dr. We found that the "crash" coming off AdderallXR, especially for my DD who is very sensitive as is, was pretty rough. Much better/smoother coming down from Daytrana patch, which she's on now. It may be the wrong dose for your daughter, and a lower one is all it will take. It might not be the right med, and a trying a different one will work better. Please don't give up or let anti-med reactions like the teacher's discourage you -- you are right, it's none of her business. You have to do what works for you and your child. Good luck!
DD and DS, both on Daytrana patch
monkeygirl, Thank you so much for replying. The ped called back and left me a message (I wasn't home when she called back) and said to NOT give her the pill tomorrow. She said she will talk with me about it sometime tomorrow. DD became VERY angry tonight and she has been crying since 7pm. She's literally freaking out that she won't get her pill tomorrow. Today was the first time she has EVER had medicine for ADD. It's not like she's been on it for a long time and has become dependent on it. She doesn't even know anything about the medicine and how it is supposed to work! Her behavior reminds me of a drug addict and it's worrying me something awful. We went to the store where we got the prescription filled and she was begging and crying in the store for me to get her a different medicine for tomorrow. I explained that I can't just get medicine...the doctor has to give us a prescription. She was practically having a breakdown over it crying and pleading saying that she was going to get a "code" in school (they get codes for misbehavior, missed or incomplete work, etc....and if they get a code, they don't get a toy at the end of the week). Have you ever heard of that happening? I don't want to ever give her anything after her acting like she has today. She also ate no supper either. She just can NOT afford to lose weight! ***I'm sorry, I spelled the medication wrong*** I am SOOOO glad that I found this forum. My dd was diagnosed with ADD (borderline hyperactive) 3 years ago. We have always been against medicating, but things have gotten so bad with her innatentiveness that she is failing everything, despite extra help. Our household was so stressful and causing problems between us all. My hubby and I finally decided to get the prescription filled that the doctor gave us (she had another appt. last week and the doctor really tried to convince us to give it a try).....Vyvanse 50mg. I've cried so much over this because I HATe to medicate my child! I have such mixed feelings over it, but I HAD to do something. I would read her diary and it would depress me so much. She was practically screaming for help. We gave her her first dose this morning. I just picked her up from school and I notice a HUGE HUGE HUGE difference. But I'm not sure if I like it. I do, but I don't. She's extremely calm. Almost too calm. It's scary. She won't stop talking to me though. She's not talking in a hyper tone....she's just calmly talking to me over anything and everything. She also keeps holding her mouth to the side....like she's rubbing her teeth together. And she's rocking from side to side while doing her homework. Also, when her little sister took her pencil, she didn't jump up screaming and hitting her like she normally does. She just calmly said it was her pencil and found a way to proove it to her sister. I was SHOCKED. Normally, dd is loud, cries all the time and is defiant at home. Her teacher is HIGHLY against medicating ADD/ADHD kids and she wrote me a long note today saying that my dd wasn't herself, she ate no lunch and she isn't acting "right". DD told her that she took some medicine to "help her in school", so her teacher wrote another note and I could tell by her tone that she's NOT happy. First of all, it's none of her business and I already feel guilty enough giving dd medicine, so I don't need someone else making me feel guilty. I had a hard enough time deciding to give it to her and I need support. Not guilt. Is it normal for the medicine to make dd act like this (dizzy, rocking, weird mouth movements, etc). Will she get her appetite back? She's already underweight and can't afford to lose any. I'm waiting on the doctor to call me back, so I'm not looking for medical advice. I just want to know if anyone else or their kids have had this type of reaction and if it will go away. NicInNC39371.5310069444Ok. I know it seems like I JUST posted, but dd is suddenly getting EXTREMELY hyper and she won't shut up!!! Is this normal when it starts to wear off? Does it usually wear off suddenly like that? Just an hour ago, she was almost zombie-like.Wow I have also been following everyones troubles. I can relate to the not wanting to do the medications. ME TOO! after a year of all natural foods, Focus & Brightspark and 5 school suspensions I gave in.
This is our 3rd week on Daytrana 10mg and I love it! Other than 2 nights of difficulty falling a sleep, my bad for forgetting to remove it when he came home from school by 4pm, its great.
I do notice he sleeps much better the nights he has soccer practice. Good old fashion exercise to make him sleep. I wish he had practice every night! This is the 1st yr we have allowed him to play because he was so off the wall and you would think he was never disaplined. His anger was such an issue.
Good luck to everyone in finding a happy medium for our kids.
Oh yeah, the appetite thing! Thats an issue too. I am feeding him ALL his favorites and I let him help me make a milkshake w/ice cream if he finishes his dinner.
I use a large dinner plate for him but a regular childs serving that way it doesn't like a full plate!
Yes, anything with Vitamin C, and that includes pretty much all juice as it isWe would have constant outbursts of anger with everyone, home, school, etc and what a difference. Even when I can see he is upset he is able to keep it in check.
Hang in there with the meds.
[QUOTE=floridayank03]Wow I have also been following everyones troubles. I can relate to the not wanting to do the medications. ME TOO! after a year of all natural foods, Focus & Brightspark and 5 school suspensions I gave in.
This is our 3rd week on Daytrana 10mg and I love it! Other than 2 nights of difficulty falling a sleep, my bad for forgetting to remove it when he came home from school by 4pm, its great.
I do notice he sleeps much better the nights he has soccer practice. Good old fashion exercise to make him sleep. I wish he had practice every night! This is the 1st yr we have allowed him to play because he was so off the wall and you would think he was never disaplined. His anger was such an issue.
Good luck to everyone in finding a happy medium for our kids.
[/QUOTE] The doctor said that if the Vyvanse didn't work, then we would try the patch next. Things were going WONDERFUL with Vyvanse until Friday. Ever since then, it's as though it will only last 3 hours.
[QUOTE=twcooke]
My youngest son, 6yrs, was on Vyvanse (until today) for about 2 weeks. He was really calm, but also clingy. We noticed the past 2 days that he was having eye tics so my husband didn't give him the meds today. He took son to Dr. (yes, PED) today and Dr. gave Strattera. I did not want DS on Strattera. He is already having to repeat Kinder this year and now it is Nov. and STILL DOES NOT know all the alphabet and sounds. (We homeschool). I don't think we can keep jeopardizing his learning. We've been thru all this (ADHD) with our other son who's on Adderall XR (Dr. is NEURO). I wsa thinking to just switch and try another kind/type of med. Should I take this son to the NEURO? Keep on with the Vyvanse?
I need help in NC!!
[/QUOTE] Hello to another North Carolinian! What dosage Vyvanse was your son on? When they accidentally gave my dd the wrong dosage (too high), she had terrible tics....just from one pill. On the 30mg, she hasn't experienced any tics though.
I think I would try lowering the dose and see if that stopped the tic's. You have nothing to lose with trying that approach. My dd is 6 and is on the 30 mg also. I believe that may be a little too strong as it is lasting 14 hours. She has been on it for 10 days. I'm thinking about reducing it some to see what it does. Here is a recommendation I found on how to do this.
"With a medication sensitive child/adult you may want to divide the dose in 1/2 to get started: Take the capsule, pour contents into 2 oz of water in mixing cup, drink 1 oz each of the first 2 - 4 days to start slowly. I have two children perfectly dosed with only 1/2 capsule/AM in this manner. "
Clipped from this article on Vyvanse...
http://www.corepsychblog.com/2007/08/addadhd-treatme.html
AMom2Two39387.7353472222My youngest son, 6yrs, was on Vyvanse (until today) for about 2 weeks. He was really calm, but also clingy. We noticed the past 2 days that he was having eye tics so my husband didn't give him the meds today. He took son to Dr. (yes, PED) today and Dr. gave Strattera. I did not want DS on Strattera. He is already having to repeat Kinder this year and now it is Nov. and STILL DOES NOT know all the alphabet and sounds. (We homeschool). I don't think we can keep jeopardizing his learning. We've been thru all this (ADHD) with our other son who's on Adderall XR (Dr. is NEURO). I wsa thinking to just switch and try another kind/type of med. Should I take this son to the NEURO? Keep on with the Vyvanse?
I need help in NC!!
Well, it looks like my youngest son can not even take the Strattera b/c he can not swallow pills!! I'm glad to say the least. Evidently, both my husband and the Ped. Dr. forgot to address this. Anyway, I do believe that I'm calling the Neuro. in the morning. Any additional advice on the Vyvanse and his tics - stay on it and see if the tics go away or get worse?
Oh! When I called the Ped office the 'Advice Nurse' (to verify that the Strattera pills could NOT be opened and sprinkled on food) told me that their computer was down and to call and ask the Pharmacist. Not very reassuring!
my daughter gets tics from stimulants. IMO they wont go away on the Vyvanse, although others here say their children's did pass after some time. Ours never did until we stopped the stim. We have never used Vyvanse. We are currently using Daytrana, she did have some tic acitivity start up on it, but it is so intermittent I wouldn't consider it an issue at all. The least amount of ticcing I've seen. It used to be really bad and interfered enought o have to stop the stimulant meds for a year and half once and most recently for 6 months. Daytrana is also a patch so no pill to swallow. She's now been on the Daytrana about a month and we're still deciding on the side effects. Soem days she is FINE, others, less fine, but our days seem to be getting better and better. It is also a 12 hour med which we need at least 12 hours.
I would take him to the neuro or to a psychiatrist. Psychopharmocologist would be your BEST choice, they have the most experience with meds and their side effects.
Twcooke -((NicinNC))
Did you find out why the Vyvanse is only working 3 hours now? I've read that Vitamin C supplements can effect it how it works, citrus drinks too. What did your dd doctor say?
So far, DD is 10 days on the Vyvanse and it is work great at school.
We love the Daytrana patch. thankfully no side effects. It is like my son has been reborn. He is not finding friends that want to play with him. Enjoying playing a sport. Excelling in his school work.
What a difference!
Hi Nic,
I just wanted to say that on the school issues, ADHD is a co-morbid with many LDs and also things like auditory processing disodery (CAPD), which can all affect learning to read, learning alphabet, etc. My son (who is ADHD and is now 7) is a perfect example of how ADHD is only the first layer. He is CAPD, and was also discovered to have an LD in rapid naming -- I have always strongly believed he had dyslexia, but the public school system will not test for that specifically. The thing I have learned is that addressing his ADHD with meds has helped me peel back the other layers of his roadblocks to learning. And despite his obstacles to learning, he is advanced in beyond his peers in other areas (3D spatial, math) so it's important to encourage his strengths in the process of addressing his weaknesses. I wish it were as simple as ADHD, but having that under control has allowed us to figure out the rest (little-by-little) and he is finally learning to read and write better. It will be awhile before he is caught up with his peer group, but we're getting there. Ironically, my DD has ADHD and she is a brilliant reader -- funny how two people from the same family, who are both ADHD can follow such different educational paths. That is what brought home to me that his issues were more complex than hers and I needed to keep digging. Please don't get discouraged -- you will find the right mix of solutions to help your child.