Not sure why this is happening | ADHD Information

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It sounds like autism, my son has aspergers and I learned alot from different books about autism and the different chartateristics

My son kind of does the opposite - when he wants my attention he will get in front of me and won't let me do anything else.  Hyperfocusing is a sympton of ADHD, but that doesn't sound like what you're describing either.  My son does something and tunes everything else out - like playing video games - but he doesn't hyperfocus on not doing anything.  I was questioning the testing you had done because it doesn't sound like classic ADHD.  Not that I'm saying he doesn't have it, just that I doubt that's all that's going on.  I'd say, especially since you have the diagnosis, check to see if there are tips for dealing specifically with autism that you could use with your son.

It sounds like some of the ADHD techniques could work for you.  For instance, working with giving warnings if he's having trouble with transitions.  And the Marble system might work with your son to reinforce the behaviors you want him to exhibit.

Good luck!

you say he has an autism diagnosis, this is really kind of common behavior. Not sure about the manipulative nature of it, generally with kids on the spectrum, it's the other way around, they retreat mor during times of high anxiety and are usually not very social. I hope you find the right person to help you sort through some of these things.....................

I was just thinking about the video taping to show these behaviours to others. The old saying " A picture is worth a thousand words," certainly has merit here. Sometimes I think we are treated as hysterical mothers because we pick up on every symptoms. A video may be the answer to this response to show these unsettling behaviours. 

Prime example--I took pictures of some injuries after a car accident and would show them to the doctors when I discussed problems I was having. I felt when the doctors saw the photos they took my questions and concerns more seriously because they could see the injuries.  In some ways it makes me angry because I was doubted in the first place.

The others are right, this doesn't sound like typical ADHD. And I am surprised the testing isn't being done more rapidly to find the root of the problem. I have always being told that early intervention has the highest rates of success. It is time to get rid of the uncaring doctors. That being said, we all realize it is so hard to find a good doctor at times. Randy can tell you some horror stories about trying to find a good doctor. Find some parents with children similar problems and talk, ask the OT or the doctors if there is parent group around. Maybe the other parents can refer you to someone.

Last word of advice--READ EVERYTHING YOU CAN ABOUT THESE CONDITIONS AND MAKE NOTES TO DISCUSS WITH THE DOCTORS. When you schedule the next appoinment, ask for a long appoinment because you have lots of things to discuss. Doctors have days when they schedule short routine appoinments (15 minutes) and days for long appointments (60 minutes+). You have learn the correct medical terminalogy. Doctors wil treat you differently if you speak their lingo. Take notes on what is being said.  Do internet research, read as much as you can, not just one or two websites. You will see the same information and be able to discount the wacko ones. If you need to, to print out information from some of the information to discuss. And if you are seeing more that one doctor, ask for copies of his medical records to maintain. (You may have to pay a copying fee.) Tell them before the appoinment that you need a copy of today's notes to add to your copy of his records. Then when you will have the information at your fingertips when visiting one of his many doctors.

 

Thanks so much for your responses. This is one behavior that i was worried about most. Of course i don't take it personal when he does this cause i know there is a reason he is doing it, or for whatever he has may be causing him to behave this way. I just don't know how to get help for him when he doesn't do these kinds of things in front of ABA therapists or anyone else but his family. He is very hyperactive and at times stares into space but that isnt a time when he is just plain angry so i could understand that. I know too the things that make him angry so i try to avoid those things, but when he starts getting angry for reasons i can't understand i wish i knew what to do. He was mad and wouldnt look at anyone then we went to eat at a restuarant with the family and as soon as we pull up and he is making kissing noises at me, and i get so confused he barely would even look at me until we got in a public place then in front of everyone he gives lots of kisses. He knows things that bothers others so he does those behaviors. Its like he is going backwards because sometimes he would listen if i ask him a simple task like "come here", even though it got him angry. Now he wont come near me if i ask him to and he looks right at me and turns around and stands there angry looking at no one. He also has a longer tantrum even when we ignore it, he use to get over it quicker and now it's back to longer tantrums. He also doesnt care about any time-outs he gets, nothing seems to work he just keeps acting the same way. He at one point did a behavior i didn't want him to do and put himself in time-out and sat there.  The developmental pedi thinks he may have ADHD and she was questioning if Biploar Disorder is in the family but she is waiting and not giving him a label just yet, she is gonna see him again closer to when he is 4, and possibly medicate him then. He acts though like the world is just about him positive or negative, like no one can give anyone else attention but him, and when someone starts talking or debating he thinks it is about him and gets this evil look on his face like someone is mad at him. The OT therapist says he constantly hugs people even strangers cause he gets sensory input from that. He will zone out and play with a string or spin things for periods of time too. I think he may be on the spectrum but not sure where and i think there may be more to it then that. I hope i find the right person to diagnose him cause now that he is getting evaluated through an ABA agency it's tough to go anywhere else for another eval. Thanks for all your kind words i appreciate the support.

i also forgot to mention about his obsession with food i have mentioned that on this board before, the Behavioral Specialist thinks he may have Prader Willie Syndrome but it wasn't diagnosed yet. i also forgot to mention about his obsession with food i have mentioned that on this board before, the Behavioral Specialist thinks he may have Prader Willie Syndrome but it wasn't diagnosed yet. He is so obsessed with food that he tries to dig into the garbage after he had eaten dinner and tries to grab every crumb of food off the floor. When we go out he asks everyone for food by using one word like "cookie"or "lollipop" and he jumps real high and wont stop and uses this high pitched screeching noise when he says it to whoever he sees. He is fed very well and when he sees someone else eating he wont look at them and gets angry but only in the family, not others outside the home he just tries to steal their food.

Hi- it sounds as though you have some real concerns about your son right now. You say he is 3 1/2 and some of his behavior sounds age related. Has he started nursery school or daycare in the last few months? Children of his age are internally warring with being dependent/independent and he is also testing his limits to learn his boundaries. So, if his behavior would be unacceptable in public it should be unacceptable at home also. Time outs are good for this because it removes the child from the source of his current frustration and gives you some time to regroup also.

If he has a regular pediatrician you might want to discuss some of this with him/her. As for Asgerger's- there are a gamut of classes withing this behavior. Studies have shown that a significant percentage of left handed boys have different Asberger's classification than right handed children and girls usually have high functioning Asberger's. you can google the Asberger's site to get the info for yourself and to become more familiar with the telltale signs of Asberger's.

Good luck and keep us posted, please.

Randy

I know my son acts out much more at home, in front of family, then he does outside the house. The therapist says that is because he is more comfortable at home. I have a suggestion for you. My neice was trying to get get her son properly diagnosed. Since he was acting differently at home then he was for the doctors, she video taped him while he was doing the things she was concerned about. Maybe you could do this and show it to the doctor.

Good Luck

My child is the most sweetest when he wants something or he isnt the center of attention, and the behavior i don't understand lately is taking everything personal thinking it is about him. I can only describe this as him acting strange like when i turn off t.v. when we are ready to leave the house for instance he stands there not looking at anyone and miserable/evil look on his face. If i tell his sister not to do something he acts angry and wont look at you,if you try to talk to him he turns around and wont look at your face. He always craves attention and goes out of his way for himself to be looked at or played with,but when something sets him off forget it. The problem: he thinks everythingin the world is about him even negative things. When we are in public though he gets upset but wont act this extreme as when he is in home with just his family. If i ignore him he stands there for hours not looking at anyone. If i try to get his attention to see whats wrong he wont look at you. Is this a 3 1/2 year old behavior normally or is this something with ADHD being hypersensitive? It's really making me upset that he holds grudges this long and get's upset over every little thing and has this behavior. Anyone outside the home wouldnt understand cause he only acts happy and loveable towards his family when he is out in public. He is delayed and getting services and mostly for behaviors so i am not sure why this is. PLus it bothers me that he can control his emotions when someone is in my home other then fmaily and get over things a lot quicker. What do i do when he just stands there angry at the world for no reason, he even comes in the house standing in the doorway and no one can get through without physically moving him out of the way. He doesnt listen either when you ask him to come by you he does the opposite and then stands there not looking at you, turns himself around and wont look at anyone. I just am at my wits end,everything is a battle

What kind of testing have you had done?

He has had been looked at by a dev pedi a few times which just asked us why we were there that day and i couldnt get everything out to her that i had to say cause she didnt give us much time. Then he gets psych evals from places in our area for services which we get ABA therapy for him but he is seen by a psycologist when we get that eval done. They said Autism is his diagnosis as of now but we havent had an eval in some time and i think the psycologists are in a hurry to just get through with the eval so he can get services. We switched agencies cause they werent giving us therapy for him and we needed to move on and find someone good to help him. He isnt having an eval probably until his 4th b-day since his packet doesnt expire until his b-day. I am so frusterated since when i call psychiatrists in my area they tell me to go through the agency we are already with and they do an eval.

Based on my experience with ADHD, which is fairly new, this sounds on the extreme end and more like something else. Of course, I am NOT a doctor and this is just my opinion based on my personal experience. Others may tell you something different. My 5-year-old son sometimes has what I consider extreme temper tantrums, which can last longer than "normal" kid behavior. That said, it's never been more than a half-hour or so in my case and he doesn't zone out, but wants even more attention via attention seeking behavior. I would definitely keep working with the doctors to figure out all of the details. I started by taking detailed notes on my son's behavior so I would be clear and not lose my train of thought or anything when I visited his doctors, etc. Good luck to you!!!not sure it is typical for his age i really don't see other children his age standing there for hours on end mad at things we don't understand. Everything sets him off, and he is so hyperactive he ends up with bruises cause of falling or whatever. I think he's on the spectrum but not sure what else. Lots of people i know tell me how informed i am and that i should be a therapist myself, so i know i am doing well there. The obsession with food i dont believe is a normal 3 1/2 behavior, eating for hours at a time. He use to listen to everything i wanted him to do and now he wont and this behavior comes up. He is back and forth listening, then not listening. When he does listen he wont look at me for hours though. Then at times he doesnt listen and still stands there not lookinga t anyone for hours if we let him. He even sometimes is mad for long periods of time. Someone comes in our home he could be mad at me then hug me in front of them and when they leave he is back to standing there not looking at anyone. I really don't think its normal thats why i am here. Like i said i cant go to another dev pedi cause he is seeing psycologists from agencies and he isnt having another eval for quite some time. Oh and the video taping been there done that. Yes i have got some behaviors on there and the dev pedi looked at it but still isnt giving me answers. The thing is he is smart and will act different cause all the attention is on him with the camera. Sometimes he stops acting the certain way he is when we are videotaping, but i have got behaviors on the tape just no one cares. Everything he does is excused.