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Hello to all. I am new to this forum and come in desperation for help. My 5 year old son was diagnosed with ADHD/OCD in May. His pediatrician would not prescribe meds, as he is not an advocate of supporting ADHD. So, I found another pediatrician that was very encouraging and supportive.  She prescribed my son Vyvanse. We started a low dose of 15 mg. which required me to split the contents of the capsule. After two weeks, his dosage was upped to 30 mg.

I am at my breaking point with the ADHD/OCD diagnosis and treatment. Being a school teacher, I know all of the "classic signs" of ADHD and I suffer from OCD. Even so, it is so hard to watch my own child struggle. My heart breaks for him as I watch him. The Vyvanse has helped him focus more, but his appetite is very suppressed. If he does not eat before he takes his meds, he can go all day without wanting anything to eat.

Also, his ADHD diagnosis was multi-symptom. He suffers from anxiety and inattentiveness. His older sister is 10 and she knows every button to push with him. I have tried to explain to her what her brother is going through, but she could care less. She upsets him by doing simple things that would not bother other children. 

Also, our friends and family do not seem to understand our son's actions. He gets his feelings hurt very easily and they all just think he is a "cry baby". Any suggestions on how to help my son and my family? I feel like we are falling apart!!  

Welcome to the board.

I would get your son into see a psychiatrist.  A pediatrician is not fully qualified to deal with all the issues your son is going through.  Research, research, research.  Go in there with as much information you can get so that you can make a more informed decision.  Write down your questions before you go so that you don't forget anything too.

Just know that the beginning is the worst.  It does get better after time and after researching the problems more you will gain a better understanding and will be able to help your son more.  Make your daughter sit down with you and read some of the materials as well, it may help her better understand what he is going through.

Also, for people that don't deal with these problems on a day to day basis they won't understand what you and your son are going through right now.  I would try to inform them so that maybe they can be a little more supportive and kinder when he is around.

And we are here whenever you need us.  This place has been a God send for me!!  Welcome and I really do hope things get better for you and your son.

hi brooknbrad and welcome!

I want to first agree with nabywife about the psychiatrist. It is going to be so important moving forward, especially with the comorbids (OCD and anxiety).

Meds are tricky, meds with co-existing conditions....trickier.....but you guys'll figure it out. My main piece of advice.....PATIENCE!!.........quite often ADHD meds can exacerbate conditions like OCS and anxiety, so you may find a bit of a balancing act required. The point of meds is to relieve symptoms the best you can with minimal to no side effects. If you feel you've traded ADHD symptoms for side effect symptoms, probably wrong med. Some side effects do subside with time though. Appetite suppresion is a very common side effect.

I would start a journal, write down everything from the time your son wakes up, all his moods throughout the day , what triggers him , or doesnt, what he eats, what meds he took and when.....etc., etc....

Your daughter........well, she is only 10. This is affecting your whole family. It's HARD on sibligns when we are trying to mkae things right for our child, especially right after diagnosis, we tend to get completely caught up. Give her a little slack, it has to be about her too, she's only a little girl. Maybe give her some extra one on one time with Mom and/orDad.....maybe try to have her help you do some things to make her feel more grown up. You can slowly educate her to her brothers issues and how they're being handled, she's not going to just "get it". I don't always "get it", I can't imagine a 10 year old.

Good luck, keep researching and keep asking........a little experience with this goes a LONG way, only you know your son completely and you are his biggest advocate.

Welcome brooknbrad. If your son is also suffering from OCD (which is an extreme anxiety disorder), stimulant medications could make the anxiety worse so first and foremost, the OCD has to be put under control first and then medications for ADHD are added. Your getting very good advice here and I also recommend that you take your child to a psychiatrist because only a specialist in the field has the expertise with regard to diagnosis and the proper treatment in terms of medications. Good luck and please keep us posted

Thank you all for your sound advice. We have definately considered seeing a psychiatrist, but so many of them are self-pay at an expensive rate. I know that when it comes to our children, money should not matter.

I am definately going to contact our pediatrician regarding the meds he is on now. Today, he seems very agitated and his OCD is awful! Everytime he tells me something, am ok response is not good enough. He wants a very detailed response like he is making sure I have heard and understood each word out of his mouth. I know it has to be making him feel crazy and out of control.   

Your pediatrician may be able to refer you to a psychiatrist that is in your insurance plan.  Stimulants make anxiety worse if the anxiety is untreated and the anxiety is going to make the OCD symptoms worse because of all of the excessive worrying.  It's all a vicious circle that has to be broken one link at a time.  When dealing with comorbids you REALLY need a psychiatrist to get the best treatment.

You have already received some great advice, so I'm here to back up their advice and to also extend some sympathy to you. Some times it's just nice to hear "I know what you mean, we're dealing with the same thing." A big part of getting through the 'bumps' is keeping contact through this forum. This place is a sanity saver, no lie. You can come here and confess and not be judged!! You will ask questions and receive valuable information and answers; it's a great group of people here!!

Your son's quality of life will get better. Our ds was diagnosed in March of last year at the age of 5.  We put him through kindergarden at barely 5. He did okay but we wanted to hold him back and the school would not allow it. Then, first grade came and we had the struggles of our lives! It was a horrible two semesters before I learned that I am our son's advocate.  DH and I demanded that he be tested through the school (to make clear there were no other underlying issues) and that he would be held back. It's been a hard decision but one that we know is RIGHT. So, my point is that you will make mistakes throughout this process and so will your ds. Prepare yourself and forgive yourself already!   And the other point is that the RIGHT decisions aren't always the easiest ones!

You being an educator will help you and will help your son, too. And somewhere along the line, you will find yourself thinking "I kind of like that about him...may seem 'quirky' to others, but I like it"  You should look up a post that says something along the lines of "pros of ADHD", it's a true treat.  Hang in there and keep us updated!!

brooknbrad, I looked up that post for you - It's titled Topic: Wanna help build "pros" side of adhd list  and is on the 2nd page of the forum posts.  ENJOY! and LAUGH! and SMILE!  

Dear Brooknbrad: we have all been down the same road as you are going down now and everyone here is pulling for you and your family. Welcome to this wonderful forum where you can vent in safety and also get great advice!

Vyvance for a first prescribed med is just usually not given. It seems to me that most doctors prescribe focalin or adderal first. The OCD and anxiety is probably a result of not knowing what people expect and not knowing how to react to them. Plus, he is not really feeling in control now. Once his meds are tweaked and corrected he should improve in that area also.  Your 10 Y/O sees the attention  that you are giving your son and can't step back at this point. You might have her make a chart of behaviors to follow for her with accompanying rewards: such as being nice, doing something nice for your son etc.

Keep us informed, we are all here for you, rooting you on!

Randy

Once again, thank you all for your kind words of encouragement. I made an appointment with the pediatrician for Friday and will let you know what she says about the meds. I am going to definately bring to her attention that my ds is suffering major anxiety. His lack of eating is also terrible. I noticed today that his shorts are sagging on him and are larger in the waist. So, I am very interested in seeing how much weight he has lost since starting the meds.

Also, I am going to call a psychiatrist that our psychologist refered after making the diagnosis. We live near Nashville, TN so our ds was tested and evaluated at Vanderbilt Childrens Hospital. The psychiatrist is located there. I know that many psychiatrist are self-pay, but will give you a statement to submit to the insurance company. Does anyone know about reimbursements?

my daughters psych doesnt take insurance and we pay out of pocket................it's been worth every penny..............we only see him every three months for weight, BP and med checks, but she has had such a problem with meds we never would've been able to manage with the pediatrician, she was the one who said to me, this is beyond my espertise, you need a psychiatrist .

Hi,

My son was dx possible ocd at 4 yrs. Then he entered kindergarten at barely 5 yrs. After a horrible semester in which he was suspended, sent home, banned from field trips and almost kicked off the bus we finally decided to see our trusted pediatrician. This forum really helped me realize that it might be adhd. When my son began to try to hurt himself to be sent home from school we had to act....

He was dx w/ adhd and put on adderallxr. I did not tell the school at first. I just wanted to wait a bit to see if they noticed a difference.

Ds had a much better semester but the adderallxr was exaserbating some ocd type symptoms. If I had told the school then maybe they could have alerted me earlier that there were some problems.

He ended up switched to focalinxr which has been much better. But in the mean time he had so many other problems that we took him to a child develmental pediatrician at ETSU in Tennesee.

He was dx w/ adhd and aspergers. Which explained soooooo much.

Anyway, without the support of this board I would have gone crazy.

Another note- my 12 yr old son is the same as your daughter. He really does not understand and often provokes ds until he is in a temper or is crying.....

We try to educate him and at times he does better.....

Hugs to you and please keep reading this forum and know that you are not alone....

 


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