Ok to start off I'm still trying to get time to myself to make it back to here, but things are going really good. Trents still having accidents, but he's trying very hard. So we FINALLY met with a "psychiatrist" today a child psychiatrist at that. I'm so excited we did it as a family. So, he agrees with ME not the other doctors that he thinks that most of his encopresis is from the concussion and that it only turned to behavioral after being pushed off for so long. Now its a habit. So in hopes that counseling will help with the behavioural then he is going to send him for a sleep deprived eeg to rule out absence seizures and also eventually get him in for an mri for his head. He thinks with all trent has been through with th trauma's of all of the surgeries and the death of his cousin and the concussion that its sort of like depression. h doesn't want to treat him for it yet, but to at least consider it in a few months but only try it for 2 months and see if we see any changes in him. If so then great if not we stop the depression meds and never go back there. he also is switching him to daytrana even though my insurance will not pay for it he said "we will figure out how to get it for him" because of his stomach issues and his hesitance to take it he thinks daytrana would be perfect for him. so we are trying him out on it. He starts it 1 week before school starts and we'll see how he does.
on a not so good note, my 4 yr old daughter went for an eye exam yesterday i didn't want to find out the hard way like we did with my son that she needed glasses, so i went ahead and got her eyes examined. Her vision is good 20/25 BUT when they dilated her eyes they noticed that the optic nerve behind both eyes is swollen. :( Not good news. So they are waiting a couple weeks then on aug 14th the opthamologist will dilate her eyes again to see if it still is. it could be nothing to as severe as a brain tumor. :( I cried all day yesterday. If its not one thing its another. My poor kids. Anyway, I hope my life is finally slowing down enough that I can come back and read how everyone is doing and keep up with others etc.
Trent goes to counseling with the psychologist every week so i'm happy about that. She wants to focus strictly on his b.m. issues for the time being till he no longer has a problem with them. Then we'll move onto his adhd and keeping that in check etc.
my girlfriends son had that same eye issue.......................she was freaking out same as you, her son has neurofibromatosis and has a tendencies to tumors..................he was FINE . Try to take it one step at a time, she is most likely fine.............I DO feel for you though. You guys have been through enough...................``
Thank you, yes its been a very very very rough last year for us.
I'm looking forward to a better year this year. I'm avoiding as much as possible of him missing school this year. He missed so much last year with illnesses and surgeries that i don't want to see him miss this year if he doesn't have to.