New and really need advice please ! | ADHD Information
I know someone who went through this and it was related to the epilepsy. You might want to have your doc seriously check this out because it is fixable with the correct medications.Welcome munch No one here can diagnose or should even speculate as to what is going on with your child. What "looks like" or "sounds like" can be something entirely different and you need to see a specialist in order to get an accurate diagnosis. I recommend that you first get your child a full medical physical to rule out a medical reason and then if all is ok get a referral to a neuro/psychologist who will perform the testing and exams required to make a formal diagnosis. Good luck and please keep us informed.
Her consultant seems unsure. I think it is Epilepsy related more then anything else.
She has had a CT to rule out other things with regards to her Epilepsy also EEG's.
Luvmykids02 I totally understand what you are saying about people not being able to say to much but I guess I just wanted someone to talk to who maybe understands what we have been going though as it gets a little tough at times.
Friends are great but don't understand things like the hand washing. I think they think I must be making alot of this up but I'm not.
Thanks for the replies
Hello I'm new to this forum and could do with some advice if possible.
My eight year old daughter has epilepsy her first seizure was in Jan 2008. I feel it is well controlled, however we see some great mood swings which if I'm honest looking back have been there for a while.
Most of the time she is fine then certain times she will go crazy NEVER in school.
She will suddenly start pushing for an arguement then seems very frightened almost as if someone is going to hurt her. She will then kick out at things and punch her bed. She has said that she wants to hurt herself or someone and cries out for help.
This is very hard to watch and when I explain it to people you can see they are thinking this is just her being an eight year old.
I don't think so...
It's like it's someone else inside her. Her eyes go wide and glazed . These mood swings last about 20 mins an hour if it's a really bad one.
It seems to happen outside the home more which is really hard to deal with as you can't go near her. She will not wet her hands now , which is a little hard at bath times. If she does she will go crazy 
Bright lights and shopping centres seem to set her off. She also finds it hard to deal with change this has to be handled carefully. She also becomes obsessive over people and sometimes things.
Her consultant is not sure if it's her epilepsy or if it could be Aspergers or ADHD.
We are very confused by it all and just want to help her take control of this. At the moment we are waiting for another referral.
Sorry this post is so long but I could really do with any advice possible
School work seems to be fine.
Thank you for up your reply. I'll have to look bi polar .
What sort of things will the doctor want to know or do ?
Have they looked at Bi-Polar or an Anxiety Disorder?
My dd is 9 and she was like that when she was younger (before we put her on ADHD meds) but she would get freaked out still if water got on her face, also makes for interesting baths, and get obsessive about people and certain things. We found out she also has Generalized Anxiety Disorder. They put her on Zoloft and it has been great. No more freaking over stupid things or fixating on things that cannot be changed.
But the mood swings more like Bi-Polar than ADHD. Be careful with that because there are times that if a Bi-Polar child is put on stimulant medication it can cause psychotic episodes. You may want to research everything thouroughly and make sure you bring up any questions or ideas you may have to your doctor.
Good luck!!
Part of the problem munch is that if your kid is the 4/100 that has ADHD, and the one out of how many? that has epilepsy and the one out of 100 that has OCD--then the odds are good, no one in your circle is experiencing what you, as a parent, are experiencing.The great thing about the intertubes is that it can bring together all of us from a wide spectrum that are going through similar experiences so we know there's thousands of us out there
Metisrebel
Thank you . I guess thats is why the forums are so good as you said your friends dont fully understand what is going on , but for my Oh and me it is very real.
I took her out for the day yesturday shopping which is normally not a good thing to do however we had a great day it was so special.
Too often we get wrapped up in all that's wrong and miss the good stuff.
Of course it's real. All that crazy stuff in my head [which is sometimes funny] is real. Dealing with a family member you know is struggling, is real.
Loving you child, knowing they are trying but can't hit the bar is painful to watch. It's real.
And having a good day with a child you know had to put in 10x the effort to behave reasonably? It's real.
We're not bad. We're "Alternatively Behaved"
Thank you , you make alot of sense . She has even washed her hands today a few times which is so great . I have learnt one day at a time.
Once again thank you
Yay for her
Yay for Mom
My friend , now 50 has suffered from a seizure disorder since he was a teen. before and after the seisures he gets moody as can be, sometimes scary so. I agree with the possibility of bipolar as well but it might just be from the seizures.